endo and pcos? does anyone have both? wha... - Endometriosis UK

Endometriosis UK

70,134 members51,941 posts

endo and pcos? does anyone have both? what are your symptoms?

hannah11 profile image
2 Replies

Hi everyone,

I am 22 and have been having treatment for endo for the past 2+ years. Despite excision surgery with a reputable surgeon I still get lots of hormone related symptoms including:

-severe period pain that was not relieved much by the surgery (periods are fairly regular though)

-on going exhastion that prevents me from working or carrying on with my education

-episodes of severe hair loss and hair thinning

-oily skin and acne

-hirsutism (face, neck, chest, arms, belly, legs etc)

-dark underarms

-migraines

-skin tags

-difficulty loosing weight and storing it around my belly

My new gynaecologist (another endo specialist) has found a tiny bit of endo that was missed in the op, but he says it's not enough to be responsible for the amount of pain I am in. During a transvaginal scan a radiologist mentioned that I could have PCOS because he saw 7-8 cysts on each ovary, but my gynaecologist is not convinced.

I am wondering if these symptoms could be linked to PCOS? Does PCOS cause painful periods? Does anyone else have PCOS and endo? How do you manage it? Sorry to bombard with questions - I just don't know what to do!

I would really appreciate any advice. I am wondering if I should get a second opinion from a gynaecologist who specialises in PCOS just to rule it out. PCOS also runs in my family.

Thank you!

Hannah xx

Written by
hannah11 profile image
hannah11
To view profiles and participate in discussions please or .
Read more about...
2 Replies
Bailey72 profile image
Bailey72

Hello, I have PCOS, and endo diagnosed just through the lining of my womb being nearly four times what it should be. I have incredibly painful, heavy periods, acne, hair on my chin. tiredness and weight around my middle. PCOS is a metabolic syndrome with raised levels of testoterone, sex hormones and other things. You do not need to have any cysts on your ovaries to have PCOS. I would try and get them to do the bloodwork to check insulin, testosterone etc. Trouble is they won't do anything, just throw metformin at you. I supplement Vitamin D and B12 and find these combat my tiredness a bit. At least I can work nowadays, rather than sleep 16 hours a day. I do have an underactive thyroid as well which doesnt help with the hair loss and other symptoms.

hannah11 profile image
hannah11 in reply to Bailey72

thank you for replying - this really hleped me. sounds like we have similar symptoms tbh

You may also like...

Unsure whether or not I have endo, what were your symptoms?

always had heavy painful periods, the last 2 years have been the worst. I get severe pain starting...

Does anyone have this symptom...aching calves?!

and similar to growing pains). He said this is not a symptom of Endo (he is an Endo specialist)...

I have now been diagnosed with endometriosis and PCOS!! anyone else manage to have both of these?

have been diagnosed with endo for 11 yrs since I was 19, I have had 4 surgeries with very good...

Support Needed - Endo & PCOS.

2012 the root cause of years of painful periods and very irregular periods was identified following...

Anyone only experienced endo symptoms after fertility treatment?

diagnosed endo from all my symptoms, referred for a lap (still waiting!) Just wondering if anyone...