First of all, I hope I've spelt it correctly! I wanted to write to give some of you hope if you are considering taking decapeptyl. I only took it for two months so this may be a factor in my experience, I have since had a hysterectomy. I was in atrocious pain/heavy bleeding and had bad fatigue and was unable to function properly but had to because I am self-employed and have three children. I am 38 and decided with my endo specialist it was time for a hysterectomy, I had the decapeptyl injection to downgrade any endo/adenomyosis before the surgery.
All I can say is that after a couple of days most of my pain had gone. I did have some side effects but also took livial hrt which I think helped. It felt like a hormonal rollercoaster but I've felt like that most my life! The first month I had a lighter than usual period with pain. The second month a very light period with pain. For me though the injection definitely reduced my pain by 80% and so it gave me a break.
Before my decision to have a hysterectomy I had an MRI which showed endometriomas and probable adenomyosis. Interestingly it turns out they were not endometriomas but corpus luteum cysts (had problems with these in the past) and that all my symptoms stemmed from the adenomyosis. There was no endometriosis.
I have had problems since the age of 15 with my cycle and it took time to conceive and miscarriages. I presumed it was due to endo but it seems it was all due to adenomyosis. I have seen some posts where people have endo but are frustrated because no endo is found, only a thought, could it be adenomyosis for you too? In the past I had got to a point where I thought having a child wouldn't be possible but it was possible, I hope this gives some of you TTC some hope.
I am now nearly 2weeks post total laparoscopic hysterectomy and feel ok, it is slow progress. I am really hoping I'll have more energy to take my girls swimming again etc (stopped 6months ago).
Anyway, sincere love and hugs to you all. Living with pain is awful, having to put on a brave face for work/family/friends is soooo exhausting. We all understand each other and it is great we can help each other and take away our solitude by sharing stories/help/advice/meltdowns on this site.
Remember what doesn't kill us makes us stronger although we may be the only ones who know of our strength.
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Any advice or experiences with decapeptyl
Any experiences with Decapeptyl
Decapeptyl injections 
Adenomyosis, and hysterectomy 
New adenomyosis diagnosis on top of my endo 😢
