Any experiences with Decapeptyl - Endometriosis UK

Endometriosis UK

70,633 members52,126 posts

Any experiences with Decapeptyl

angee_1 profile image
8 Replies

Hi there, has anyone had any experience with Decapeptyl? This is my second week and today is day 26 of my cycle. All night I have had sharp electrical shock type pains and when I went to the loo to wipe the tissue was pink. Is spotting normal. Woken up with swollen lower stomach and a bit worried . Can anyone help? Thanks

Written by
angee_1 profile image
angee_1
To view profiles and participate in discussions please or .
8 Replies

It is normal to get a flare of symptoms in the first month as it causes a hormone surge before you go into the chemical menopause.

Hang in there. x.

angee_1 profile image
angee_1 in reply to

Thanks joreilly. I haven't been diagnosed for endo yet......consultant has gone straight to treatment with monthly injections. No lap as I am too fat! Period has arrived today and all flared up - including bowels! Yes I will hang in there! Thanks for the reassurance.

Kmas profile image
Kmas

Yes hang in there I did 4× 3 months cycles , was way worse at start and then I was pain and symptom free was amazing !!:)

angee_1 profile image
angee_1 in reply to Kmas

Thank you, that's reassuring to know. Since July I've been in chronic pain everyday. It's like ground hog day. It's horrendous today, so many odd feelings and pain. Glad you are pain and symptom free!

Kmas profile image
Kmas

Not anymore unfortunately after my lap I have a continous period and pain so draining 😑 my experience ifor decapeptyl was great though bar the hot flushes!!

angee_1 profile image
angee_1 in reply to Kmas

Sorry to hear. It's all so overwhelming and draining. No hot flushes yet! I am sure they will come. X

Luna1990 profile image
Luna1990

I'm currently on decapeptyl, due my 4th injection next week. Unfortunately it hasn't worked for me and I'm still in a lot of pain, all it's done is stopped my periods and left me with awful menopause symptoms which I'm having to take tibolone. The first month was horrendous and I had 2 periods one after the other. I hope all goes well for yourself x

angee_1 profile image
angee_1 in reply to Luna1990

I'm so overwhelmed no diagnosis and straight to these injections and pains over these two weeks have been horrible, I am on my period now and it's the worst ever! Left side is bubbling popping and fluttering and the usual period and bowel pains! Bleeding isn't that bad, it's the pain! Thanks for the reply! Good luck to you too

You may also like...

Any advice or experiences with decapeptyl

decided that I should try decapeptyl and tibolone HRT, I was just wondering if anyone else has been...

Decapeptyl experiences

ended up getting decapeptyl instead. I've found it quite hard to find people's experiences of this...

Decapeptyl injections experiences

your experience with these injections? What side effects did you experience? Or did you experience...

Decapeptyl injections any success stories please

Tibolone HRT I am 44 with no children Had my first injection 3/12/15 second 3/3/16 and due to have...

Anyone else experience no improvement with decapeptyl?

dull pelvic and lower back pain which radiates into my legs. I’ve had quite a bit of time off work