Any experiences with Decapeptyl - Endometriosis UK

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Any experiences with Decapeptyl

angee_1 profile image
8 Replies

Hi there, has anyone had any experience with Decapeptyl? This is my second week and today is day 26 of my cycle. All night I have had sharp electrical shock type pains and when I went to the loo to wipe the tissue was pink. Is spotting normal. Woken up with swollen lower stomach and a bit worried . Can anyone help? Thanks

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angee_1
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8 Replies

It is normal to get a flare of symptoms in the first month as it causes a hormone surge before you go into the chemical menopause.

Hang in there. x.

angee_1 profile image
angee_1 in reply to

Thanks joreilly. I haven't been diagnosed for endo yet......consultant has gone straight to treatment with monthly injections. No lap as I am too fat! Period has arrived today and all flared up - including bowels! Yes I will hang in there! Thanks for the reassurance.

Kmas profile image
Kmas

Yes hang in there I did 4× 3 months cycles , was way worse at start and then I was pain and symptom free was amazing !!:)

angee_1 profile image
angee_1 in reply toKmas

Thank you, that's reassuring to know. Since July I've been in chronic pain everyday. It's like ground hog day. It's horrendous today, so many odd feelings and pain. Glad you are pain and symptom free!

Kmas profile image
Kmas

Not anymore unfortunately after my lap I have a continous period and pain so draining 😑 my experience ifor decapeptyl was great though bar the hot flushes!!

angee_1 profile image
angee_1 in reply toKmas

Sorry to hear. It's all so overwhelming and draining. No hot flushes yet! I am sure they will come. X

Luna1990 profile image
Luna1990

I'm currently on decapeptyl, due my 4th injection next week. Unfortunately it hasn't worked for me and I'm still in a lot of pain, all it's done is stopped my periods and left me with awful menopause symptoms which I'm having to take tibolone. The first month was horrendous and I had 2 periods one after the other. I hope all goes well for yourself x

angee_1 profile image
angee_1 in reply toLuna1990

I'm so overwhelmed no diagnosis and straight to these injections and pains over these two weeks have been horrible, I am on my period now and it's the worst ever! Left side is bubbling popping and fluttering and the usual period and bowel pains! Bleeding isn't that bad, it's the pain! Thanks for the reply! Good luck to you too

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