I'm new to the excruciating pain and have not yet been diagnosed but I'm wondering how all you ladies deal with the pain? Is there certain things you do to help?
Also, how do you go about your normal day? What about work? Sex?
I just feel like I'm losing everything right now because of possibly having Endometriosis and I'm curious as to how other women deal with everything?
It took some work, but I basically tried every painkiller going until I found a combination I could function with. I also tried all the hormone treatments. If the consultant offered it, I tried it. I'm fortunate in that I'm self employed and work from home so I was able to take a day off or just work in bed in my pyjamas whenever I needed to. Sex has been tricky. It didn't kill my sex life completely, but it was very difficult both emotionally and physically. I'm now 8 days post TLH + BSO + excision which I am hoping will give me better quality of life.
It does take a while to get your head round the diagnosis and to grieve and to accept that this isn't something that's going to be cured quickly and easily. In the short term your GP should be able to help you with pain meds to get you through the next few weeks (though in my experience it was very difficult to get anyone to take it seriously until I'd had my diagnostic lap and was found to have very severe disease, at which point my GP's surgery bent over backwards to give me whatever I needed )
Reading everything everyone has written it kind of makes this all so real. I feel so low knowing I could have something that will affect me the rest of my life. I've tried a few painkillers, but I keep throwing up because of the pain which makes me then throw the meds up. It's like a vicious cycle. I have had sex once in 5-6 weeks and I just feel like I'm not fulfilling my boyfriends needs, and I feel even worse because he's looked after me so much. He hasn't pushed once because he knows I'm in pain, I just feel like I've lost a really important part of our relationship. What's even worse than that though is the fact that even when he wants to kiss or cuddle I find myself getting irritated a lot because I can't get comfortable and I'm always so hot. I just miss not being in pain. I'm so grateful for everyone's help and support though. Wouldn't be able to get through this without everyone supporting me. Hopefully I can get diagnosed soon, I just want to know. The GP I saw didn't seem to understand or even care what I was saying. She kind of brushed it off. Fingers crossed when I have the scan that things can move forward with either a diagnoses or a laparoscopy.
it is worth going back and seeing a different gp - they can give you anti sickness meds which can help, and there are things like diclofenac suppositories which are worth a try. It sucks, I know.
Luckily my boyfriends mum has anti sickness tablets that I've been using. It's more because I've lost my appetite so having really been eating which means when I take painkillers they irritate my stomach and I through up but if I force myself to eat I feel like crap anyway. I can't really win with that but I can live with it. I just want to have my scan already, it's booked for the 12th, it feels like a life time away.
I can totally relate to this! I haven't been diagnosed with endo yet either, but I just constantly feel so guilty for my boyfriend. Theres been a few jokes by other people that I don't 'satisfy' him enough, but i'll be on my period, come off it, attempt to get close, it will hurt and then that will be it, I'll be bleeding for the rest of the month. I just feel so disgusting and miserable, I put myself off it even when It is possible, and although he's very understanding, I can't help but feel like he could do so much better. I'm always so hot too! My mood is off the scale as well, if he tries for a hug sometimes I'll just bolt out the room because I'm irritated and overheating. I feel like this is ruining my relationship let alone my life, I wish i could stop crying during sex. I'm having a scan next week, finally got through to the doctors, but i do have a sinking feeling that this is endo, so I hope everything goes ok for you too
Sounds like we are both in the same position. Please, if you'd like then please message me. You're the first person so far I've found that is in the same position. As in hasn't yet been diagnosed but is in the process.
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