I haven't posted here for a while but I've posted in the fertility forum many times recently.
I thought my endo was under control after my surgery and 6 months of zoladex. So I went ahead as advised by my drs with my ivf journey in my hope for a baby.
My first go at ivf in January was successful. I was delighted but always had a feeling that something wasn't quite right. 😔
I went for my first scan at 7+5 weeks and there was no heartbeat 😥. I was heartbroken. A repeat scan a week later confirmed my beautiful baby was gone and I miscarried 2 days later. I was beginning to focus on my grief and looking to the next step when it hit me!
My endo flared up like it's never done before. 2 days following my miscarriage I ended up in a&e with the most horrendous pain I've ever experienced. I thought at the time it was related to my miscarriage. But after the first lot of pain meds wore off and the pain returned it hit me again and I knew that pain and it's location meant ENDO!!
I had an urgent CT scan which showed my left kidney and ureter had grown in size. Something I didn't know could happen coz my left kidney is meant to be non functioning. And the cause was a mass of endometriosis that surrounds my ureter. I went into urinary retention and had to be catheterised and also ended up with sepsis.
The drs wanted to operate but realised it was too complex for them so I had to sit while they tried to control my pain with more drugs than I've ever taken in my life!! 😩
So there I sat for 8 days and yesterday I was sent home still in pain and popping pills!! I now have to wait for an appointment with my specialist which I'm told he has no availability! 😩😔
I'm so frustrated how long things take when our quality of life is so poor. I don't feel I can begin to grieve for my baby until I'm physically well. I'm off work and even if I do go back I can't work in my role of responsibility if I'm drugged to the eyeballs!!
Sorry this is so long but I'm reaching out to you ladies who I know you know how this feels. I work for the NHS so I know how stretched it is and things do happen eventually but my life is on hold now until this is sorted and time is ticking away. 😳