Hello there. This is my first time on any discussion group. I have struggled for years with Endo. Have had 5 laparoscopies, now have Adenomyosis which was described sensitively as- "You womb is like a current bum, I can't operate on that". After this, my body rejected the Mirena Coil which was fitted during last surgery.
I have asked for a year to see a new specialist as moved and now waiting on appointment with Endo surgeon. I was referred by GP but the Gynea I waited 6 months to see just said, - " Im not an Endo specialist - I can't help you, I will refer you again".
I am in pain most of the month with about 7 days rest from pain each month. I got a Stomach Ulcer this summer and was told I "can't take pain killers anymore". Which is like you have to stop breathing to someone with Endo/Adeno. As you can tell Im very down. Take citalopram for depression for 10 years but again GP says I have to stop that due to stomach ulcer so now on v low dose which has no effect on my moods.
Im desperate and very alone. Can anyone advise or give me any ideas to self help as Im finding it hard to see the point in anything at the moment. I have no children and Im 43. I had a good film industry career which i had to stop due to my endo pain. I now work in an office locally at a desk and I still get exhausted. Sorry to long moan. Never done this before and flood gates opened. Thank you all.