I had a lap at a BSGE centre 2 weeks ago. Everything was fine, my recovery has been easy. They removed a small amount of endo from my bladder and drained a cyst on my left ovary, but the majority of my endo was left in place as I have very extensive disease on my bowel and the plan is to excise it all in one go and have a hyst and removal of ovaries at the same time.
I was told before the lap that I would need 3 months of zoladex before the hyst, and was left with the impression that I would be given this whilst in hospital and that the wait for the hyst would only be 3 months (as I had waited 6 months from referral for the first lap).
2 weeks on, I've got no follow up appointment. One of the specialist nurses was supposed to ring me a week after the surgery to see how I was getting on, but this didn't happen. I rang the hospital and left a message for them last week but still no reply. I've got no idea when I will be having the next surgery - the consultant said I couldn't have the zoladex until I have a surgery date as he didn't want to give me more than 3 months worth (as I've already had 5 months on it this year).
I know these centres are overwhelmed but really, are we supposed to be left to our own devices like this? Since I was referred in May, I had to kick up a stink with Pals to get an appointment in the first place, then kick up a stink again because I needed advice about my medications pre op and it took over a fortnight to actually speak to anyone at the hospital. I want to stay with this centre because I have confidence in the consultants but the rest of it is an utter nightmare. Ugh.