questions/advice?

[caitlinm]

Hi,

so normally my 'undiagnosed' endo acts up when im not on a period and the doctors are now saying this is 'not common' yet i've read so many posts where women are saying its never just at their period they get it all different times, its becoming so stressful because they're making me feel like a drama queen and as if im making it all up, my syptoms line up exactly with it and mostly doctors agree its that, they just wont do the surgery so i've no way of proving im right,

also have some questions about when others get their period, recently i've been feeling really ill when i get mine, like more nauseous than usual and really exhausted and quite weak, does anyone else get this?

would really like to end a doctors or hospital appointment not feeling like a dramatic lunatic anyone else ever feel like this?

[tmc182]

Hi. Sorry you feel like this it's awful isn't it. After seeing multiple doctors and leaving the surgery in tears on numerous occasions I kept a diary of all my symptoms, and went in armed with the diary and a list of all the symptoms i'd had. I made a double, book ahead appt so the doc could see I was trying to help his time, and also gave enough time for him to consider the list, ask questions etc. Maybe i was fortunate to eventually find a good, understanding doc, and he was certainly grateful I'd booked a double appt. I got referred to various specialists inc. gynae - just had another lap. Also if you can take your partner, or a family member, I usually find that helps. Endo can't be diagnosed without a lap, so if they consider it to be fairly likely they should offer you one. I have had three laps and each time it's been a long road, with repeat GP visits to get referred back to gynae, despite my endo being diagnosed on the first lap! I have generally found that once past the GP stage gynae consultants offer me a lap without any need for persuasion, even the first one. Good luck and hope you get some answers.

[chloe3011]

I can relate to this, it sadly took me 10 years to get diagnosed. Countless visits to my GP begging for answers. I would often faint and be sick during my period, I've had such a lot of time off work! I had given up but during a routine trip to the doctors to get more pain relief I saw a young new doctor who asked me about my symptoms, she was kind and understanding. She told me that my cervix is tilted which can lead to endo. Finally she referred me to an NHS Gynae in a private clinic. I got to describe my symptoms to an expert and he immediately booked me in for a lap. Don't give up hope, I hope you find answers and that it doesn't take as long as mine did.

[Cola71]

Sorry to hear that your doctors are making you feel like this - don't give up hope and keep fighting your corner as you are the one who knows how you are feeling. Definitely mark all your symptoms on a calendar or diary - for me, seeing the cyclical nature of all the different symptoms that can be experienced from one month to the next really helps and when someone, usually a doctor, tries to dismiss it, I can show them clearly what is happening. I have a lot of nausea with my periods too, mostly I can control the sickness with ibuprofen taken with rice cakes, but it doesn't always work. Keep going and good luck getting a diagnosis.