I am currently experiencing upper right quadrant pain, under my ribs, in my back, neck and shoulders. I have had chest X-ray and scans which are all clear, it's been nearly 6 months now with no release!!
I've had endo since I was 13 now 36. I saw the gynae last week and said I thought I had diaphragmatic endo but he pretty much laughed me off! He put me on the combined pull back to back which hasn't done anything! I'm truly at a loss and in so much pain!! I don't know what to do
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shellypenning
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Hope you don't mind me replying. My partner who is experiencing the same as you also said to her gynaecologist what about diaphragmatic/lung endo and he too told her, it's too rare! To which she replied well someone has to have it, it's not like I'm the first person.
She's now been discharged from gynae and is with thoracic consultants. She too has just had a CT scan and everything came back clear.
All of her symptoms and pain point to that but still no answers. Just to say you aren't alone. I too have endo but in the womb/ovary area.
She has like a popping sound in her side. The pain is constant but around 12-14 days before her period. During her period it's horrendous. After her period has finished it kinda calms down, then the cycle starts again. She's been complaining of pains in her legs too. She always says she feels like she's been winded?! Does any of this sound familiar? Xx
He dismissed me fully and said that he was pretty sure I didn't have it. I explained my situation he really wasn't listening. He said because my X-rays and scans came back ok I would not have it.
I'm totally confused as I didn't think you could see on a scan?
I too was going through the same pains and couldnt get any doctors to take me seriously but through food elimination i have decreased alot of my pain. Aswell as the obvious like wheat, gluten and dairy try taking yeast out of your diet. Since stopping it completely i have stopped getting the pain in my liver area. I hope this helps as i feel your pain x
At first i thought it was going to be but you soon get into a routine of no bread. I managed to find a mixture from the online company Barkat that does a yeast free bread mix which is ok (not brilliant as bread goes but still ok) but ive got used to having Warburton wraps, salads, and soups more so now i hardly even think about it.
Just be vigilant with certain cakes and lager and things as you could be consuming it without realising
Im also taking some supplement pills from an online company (sorry dont know what they are called or where from as my sister ordered them for me, but i can find out if you want) that are supposed to clean yeast out of your system and again i think have really helped. x
Yes all the same. I was convinced i had endo on my liver but at my last lap in January they checked and said it was all clear. Ive been under 2 gastro drs aswell and they were both useless. No one wants to look at the bigger picture and give you ideas as to what to try. Its all been through food charts and eliminating nearly everything to get where i am today which still isnt brilliant but definately better than i was a few months ago.
Im waiting to have both ovaries out in the next few months but am scared what new symptoms that will bring as im sure lack of progesterone and too much oestrogen first started me with so many stomach problems including horrendous acid reflux that resulted in oesophagitus and gastritis which has now healed.
Endo is the worst illness ever which brings so many other issues.
Keep intouch and let me know if any of this helps xx
Hello, may I ask you which hospital you are being seen, I also live in Swindon, waiting for lap in Oxford , upper back and shoulder pain is really bad, had chest CT done , all clear .
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