Fatigue. Never felt so tired lately. I don't know if it's endo on the bowel, having no ovaries, or the oestrogen blocking spray. All my bloods are okay so it's not anaemia or diabetes. Hopefully my mri scan will show something up as fed up with the pain right lower side . I said to my gp it's like appendicitis but I haven't got an appendix. I take tibolone as only 46 years and my mum has severe osteoporosis. My bone density scan was okay. Everything is so confusing with this disease. Colonscopy was a failure. I had more energy 3 months post op major surgery than I do now. Really need some energy. Day off sleeping today. It's hard juggling illness, children, dogs and work. At least now I'm at a bsge centre so if I need further surgery on my bowel I feel safer. My local hospital gynae said I may need further laproscopy/bowel resection , referral to colorectal surgeons. Awaiting on what Bsge centre says. MRI SCAN eventually due monday. I had an urgent ct scan pre xmas just to check I didn't have a bowel obstruction. Endo doesn't show up on ct scans. All the doctors now that right? Doesn't really show up on colonoscopy unless deep infiltrating endo. The fact they couldn't get scope around first bend is worrying. But the doctor reckons it's because of prev extensive surgery. Will there ever be a cure for endo? Let's hope by participating in research at the specialist centres a cure one day will be found. Life is difficult at times. Petty arguments and trivial things get on my nerves. I wasn't meant to have my ovaries and appendix out 2 and 1/2 years ago but my ovarues had turned into huge chocolate cysts and were densley adhered to my left sigmoud colon, my right ovary was wrapped around appendix abd stuck to bowel. I had a normal ovaruab ultrasound 9 months pre surgery . I'm not bitter far from it something could have ruptured. I just wish a cure could be found. I know I'l most probably need further surgery which is frightening after last time. My gynae at local hospital said he thought that starving the residual disease of oestrogen ( medically treating it) would kill it off. He said my appendix and pelvis area was badly diseased . Endo is complicatedhence why more research is needed. Thanks Lindle for directing me to the right site and nhs guidelines. My gp had never heard of bsge endo centres. As long as it was nhs centre she was more than happy to refer me. It's about working together to empower women for the best outcome for this awful disease. Helping each other and giving support is what this site is about.
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