endo inside my bladder.: Hi everyone, not... - Endometriosis UK

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endo inside my bladder.

Heidi11 profile image
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Hi everyone, not posted on here for a while, but on Friday I went for a rigid cystoscopy to see why I am having so much pain still. it appears that I have patches of endo deep inside my bladder, I only under went full removal of all my lady parts and excision in February and I thought that that may be the end of it but no, I am completely gutted. my case is now going through an MDT meeting again and I have to have another MRI done. more surgery awaits I just don't know what and how they treat bladder endo. Has any one had experience of this that could give me some advice or info, its really upset me as I'm sure you can all imagine. love to all Rachel xx

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Connellj profile image
Connellj

Hi, I had bladder endo a year ago. Sorry you are having to go through it again. The operation was not too bad as they removed it by cystoscopy under a general anaesthetic so there were no abdominal excisions. I felt similar to after the cystoscopy with stinging on going to the toilet and blood in my urine. I only needed some paracetamol for the pain. It was quite a large mass and touch wood it doesn't seem to have come back since.

Hopefully you can get it done quickly as you are going through MDT. best of luck.

Jennifer

Heidi11 profile image
Heidi11 in reply to Connellj

hi Jennifer, thankyou for the reply, unfortunately it has spread all through my urothelium which means my kidneys are involved too. Really fed up as in February I had full hysterectomy, so nothing left at all, oh well the journey starts again xx

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