Removing Ovaries?

[LauraBaker]

I met with my consultant last week and he suggested removing my ovaries to help with be endo pain.

I've recently has zolodex but it failed and didn't help my pain at all.

Just wondered if anyone has had this. I'm completely fed up and feel like this endo is ruining my life

Thanks xx

[Hidden]

I'm assuming this is a general gynae consultant? I currently have one suggesting the same thing so I am going to see a specialist instead. Removing your ovaries seems like such a simple/only option to non specialists. But it will not stop the endo pain and will give you all sorts of other issues. I have been shocked how little the two general gynaes who I have seen actually know about endo.

[LauraBaker in reply to Hidden]

Thank you for your reply. I've been looking into it and it comes with lots of cons. I'm slightly worried. My Gynae consultant is apparently the best one our hospital has and all other consultants and Drs have to run their decisions through him.

I'm worried that they will do it and it won't help at al. Will anything make this go away?

[Hidden in reply to LauraBaker]

Yes but if he is not an endo specialist you shouldn't be undergoing such radical treatment with him. It doesn't matter how senior he is. I was referred on to the most senior at my hospital. He tried to reassure me that he was a 'specialist' and that knew what he was doing. But he wasn't and he didn't. I am pretty certain that I know more about endo than him. It's all too easy for them to simply remove our ovaries but it will not help. Too many ladies have had organs removed unnecessarily because these people do not have enough understanding about endo. I am seeing a specialist in two weeks. I have read lots about him, looked at reviews etc. I know he won't remove my ovaries and he is more likely to be able to help me. PS are you on Facebook? Endometropolis is excellent, I found lots of women with the same issues of me. That's also how I found my specialist.

[LauraBaker]

Thank you for your reply... How can I go about seeing a specialist? And is that a private option?

I'm 27 and live in Wiltshire. My endo was diagnosed in 2010 by lap. I've been lucky eneough to have 2 children.

So far I have tried the pill and a course of zolodex. I've been off work now for 6 months as the pain is awful. Been admitted to hospital twice in those 6 months. X

[katrina1234 in reply to LauraBaker]

Hi Laura, I also live in Wiltshire and I had a horrendous time at one hospital. Hope it's not the same one. I ended up going to another hospital which is a a BSGE centre. Please feel free to message me privately if you want a chat.

[Hidden]

Hi Laura. Have a look at bsge.org.uk/centre/

You need to go back to your GP and ask for a referral. Go armed with the information and exactly who you need to see. Under NHS Choices you have every right to do this.

Also, if you can join endometropolis, there has been a thread on there in the last 24 hours about endo centres in Bristol and Oxford. If not, PM me and I'll have a look for you. Specific consultants have been discussed, which is not allowed on here. Speaking to other ladies in my situation is what finally made me mind up when choosing a specialist.

All the best. X

[Juls1971]

Hi Laura

I am 44 and had my ovaries removed one year ago today after a very successful 8 months pain free on decapeptyl. I've been not too bad but struggled with hrt and indeed had to change to a much lower dose as my consultant felt it was growing the endo. I unfortunately also have Adenomyosis so am considering a hysterectomy. My endo is stage 4 affecting uterosacral ligaments and surgery will excise the endo at the same time. I had laproscopic removal of ovaries and tubes and recovered really well. Just a shame it didn't completely work for me. I wish you good luck in your treatment and whatever you decide - keep us posted

Julie xx