Pain after hysterectomy

[Knickknack]

I had a abdominal TAH and BSO I ended up having endo and adeno. I'm now really wishing I had gone to a specialist because I think I may have rectovaginal endo. Does anyone have any advice?

[Hidden]

Hi KnickKnack. I had a LVAH at BSO and that's when they discovered I had Stage 4 endo and adeno. I had to push for a follow up in clinic and asked to be referred to the BSGE centre. This appointment has now come through. Please ask for a referral to your local BSGE centre. Check out Lindle's very comprehensive posts on this subject. She is very knowledgable and informative about this. Do not be fobbed off! Best wishes for recovery xxx

[Knickknack in reply to Hidden]

Thank you for your response. I'm in the states but I think I will try to move forward with a specialist

[AmyLee]

Hi I've had excision for severe recto vaginal endo by specialist and Hysterectomy. My pain and fatigue is worse. Have you had an MRI, that gave good view of RV endo in my case.

[Knickknack in reply to AmyLee]

No Mri but had laparoscopy. Going to look into a specialist thank you

[Knickknack in reply to AmyLee]

Your pain and fatigue is worse yikes maybe I should just not go there. Sorry to hear you are worse off after specialist excision

[AmyLee in reply to Knickknack]

No I'm glad I had it removed, pain different just Drs don't have explanation. You'll always find the difficult, still looking for answers cases here so don't take me as the norm!

[Marcia71]

I too had TAH and BSO in Feb 2015 then further lap to remove endo and adhesions. And still it's growing back. Neither of these done in BSGE clinic so now got myself referred and have appt next week. Hoping they can help.

In my experience no scan (ultrasound, CT or MRI) show endo so just wasted time for me. But if they offer don't say no.