I am definitely interested in talking to other women whom are suffering with pain everyday from this disease. I am sick of taking pain killers and birth control for treatments. In three months I will be starting a treatment called Lupron. Any advice on Lupron?
Sincerely a desperate young women crying out for help.
I have heard some bad things about Lupron side effects, but I've never personally been on it. I've had success with the endo diet in the past, even though it's really hard at least it took the pain away. I'm going to be starting it again soon since my pain has returned after having my daughter.
Hi I'm sorry you are suffering so much but Lupron shouldn't be given to anyone under the age of 23. This is nhs guidelines. It can cause bone density loss, and you don't reach max bone density until at least 23.
My advice would be go back to GP and get a referral to a BSGE endo centre.
Where you should get the appropriate treatment.
Thank you Jean I do appreciate your advice I will definitely feel like I need a second opinion from another gynecologist with no disrespect to him but he is very young and I feel like I need more of a experienced doctor who has dealt with very difficult endometriosis and adhesions aswell. My gynecologist has done surgery on me a few months ago and I still do not see a change in my pain. I am very interested in other treatments but I am worried for side effects like you have mentioned about lupron. Thank you again for your response.
Hi i suffer everyday with pain and always so tired 
usually tak 500mg of ibroufen and sometimes a painkiller with it. But im trying my best to stay positive and keep active as much as possible, im now my 8th week of couch to 5k, it really is helping me mentally, but definitely couldnt do it without taking painkillers.
I had laparoscopy, d&c, hysteroscopy and mirena coil fitted on 17th may and has made no change to the pain. Still bleeding with mirena which i think is expected!
At this stage i really dont know what to do as i never was a person to take painkillers at all. But i did read up that what you eat can affect it. So this week im trying to stick to as much whole foods as possible and stay away from junk food to see if it helps. Have to say yesterday was the first day in a long time i lasted until evening without ibroufen...so there could be a link xx
Thank you for sharing that, I have read up on the foods that affect endometriosis it's hard to stay away from meat and wheat for me but I agree it does help. I had a laparoscopic surgery May 27th of this year and it did not help My pain at all, I'm still getting bad flare ups I thought the surgery would help but it didnt. 😔 I take pain killers everyday and I am constantly in need of My heating pad. Living with a chronic pain disease everyday is not easy and it's sad that so many women whom have endometriosis are ignored.
Yea meat and wheat is impossible for me too. On sunday evening i chinese and chocolate as i was away for the day and i could barely walk monday morning with the pain. Thinking greasy food and chocolate definitely affects me
I thot lap wud work for me too but it didnt. Everyday really is a struggle, wakening up with pain and feeling so tired all the time. I find it hard that people dont believe me that im on fire inside, just because i look ok they think im making it up x
Stages of endometriosis?
Stage 3/4 endometriosis diagnosis
Endometriosis since I was 21
My 17 year old daughter has been diagnosed with endometriosis 
Stage 4 endometriosis 
