As I mentioned in a previous post, I have been referred (urgently) to an endo specialist în January, as I had a lap in October and the symptoms came back, more intense this time. Everytime I saw my gp with more complaints about pain, new pains, stomach pains, fatigue getting worse, losing my job because I haven't been able to keep my symptoms under control and, for the past 3 months, becoming bed ridden (my brother + friend care for me: they cook, clean, help with medication, accompany whenever I have any appointments etc), the gp asked if I saw the specialist, I would say no, and it's been x months and it was an urgent referral, and the gp would say that it usually takes a while....
Thank to your advice on the previous post, I called to hospital to see what is happening, how hey can allow so much time to pass, when surely they must know about the visits to A&E, the 10 different treatments tried and failed etc. I was left speechless when the lady told me that my appointment has been changed from urgent to routine...... I said I don't understand, I lost my job, I'm in awful pain every second, there must be a misunderstanding... Nope. I asked who could take such a decision and why, as it doesn't make sense.... All I've been told was to contact my gp, as she, the gyneo Secretary cannot do anything.
This is absurde! It's absolutely idiotic! I don't understand how it happened! How can that happen?! Why was I not noticed?! I am absolutely revolted, as if the appointment wouldn't have been changed, I would have probably still be working now, I wouldn't have had to apply for esa and pip and I wouldn't have gone through the nightmare that the past 6 months have been. I feel like there has to be someone who has to pay for this! Someone took this decision and messed up with my health!
I'm sorry for the rant, but the things that we have to endure because of this completely flawed system is unbearable. I'm sure there are better ways to keep patients informed.