Waiting game ..: Hi ladies, haven't posted... - Endometriosis UK

Endometriosis UK

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Waiting game ..

ellis13 profile image
5 Replies

Hi ladies, haven't posted on here for a while now. So I had my surgery back in Feb and was diagnosed with endometriosis after 8 years of fighting and forcing doctors to listen to me.

My follow up appointment was last week but got cancelled to this Wednesday. I'm feeling really nervous as I don't know what to expect for this app. I've had 2 periods since my surgery and the pain has been unbearable, I am now on constant codine for pain relief. Since my surgery I have been soo low and I keep having small anxiety attacks when I'm not with people I'm comfortable with or if I'm not with my other half. I'm also suffering terribly with headaches, is this a symptom of endo?

Also I'm finding certain foods are effecting me and make me very uncomfortable.

I can't wait for my app on Wednesday to mention all this to my gyne. I'm so fed up (still) 😔

Ellis xx

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ellis13
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JeanOsborne profile image
JeanOsborne

Oh Hun I'm sorry to hear your in pain. Was you lap just a diagnostic or did they remove the endo?

ellis13 profile image
ellis13 in reply toJeanOsborne

It was a diagnostic but he removed some whilst I was under. My right ovary was stuck to my bowel too X 

JeanOsborne profile image
JeanOsborne in reply toellis13

Hi Hun, are you with a general gynaecologist or a BSGE specialist? 

ellis13 profile image
ellis13 in reply toJeanOsborne

I'm just with a gynaecologist at my local hospital Hun x

JeanOsborne profile image
JeanOsborne in reply toellis13

Hi Hun have a look on the BSGE website for a specialist centre near you and ask GP for referral to them, they can't refuse. 

Unfortunately general gynaecologists tend to miss endo in places as they only normally look at reproductive organs. So get a second opinion from a endo specialist.

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