any one ever felt like myself???

[emma-85]

This is how I feel:

Wanting answers!

Please believe me!

So fed up!

[JeanOsborne]

Yes I spent 30 years knowing something was wrong but doctors wouldn't listen. Finally a new doctor started and believed me . Was finally diagnosed through laparoscopy in July with severe endometriosis and suspected adenomyosis. Please don't give up. Keep trying different doctors and keep a diary of symptoms so you can show them . It will help to give them a complete picture. You know you're body better than anyone so trust your instincts. Wish you well.

[emma-85 in reply to JeanOsborne]

So frustrating been back and forth to gps for years. Had Lap showed 2 patches old/ inactive endo, after a lap before with a diff consultant stating originally no endo!Had appendix removed, due to pain and hospital admission, told I have a chronic pain condition!Told the answer to this is amitriptyline or gabapentin...birth control or babies!Now ran an mri for ongoing pain and ultrasound as pain has added to the other side now!Some GPs have been great with me, then others tell you it is IBS/ fibromyalgia/ stress...none of which I suffer! Even had a gp making out he was a psychiatrist and trying to psycho analyse, to which myself and my husband left the practice laughing! My work say they are supportive but document every sickness episode then on the sly say I will get a warning! Sometimes I am in work vomiting, in pain a lot in the back, tired a lot, and my periods flood! People are not supportive, for example at work had comments behind my back, "she only goes off sick on a particular shift!" which obviously is not the case! I am stronger than tears, all I want is answers, not pain relief. xxx

[Tboag]

Yes me: you are so not alone,

I've been struggling with periods for such along time, I'm one of the lucky ones that has children, but because of that none of the gps put 2 and 2 together, just kept sending me away with the familiar saying we hear so often, it's just periods get used to it, I went to the docs so many times regarding back aches that travelled to hips and pelvic bone, well that's what I thought it was, I used to say it's like a rubber ring of pain, and they never asked any questions just send home with pain killers, I've spent a fortune over the years seeing a chiropractor, ok it did help me with my pain, but if I was dealt with properly I wouldn't have needed to be seeing them, it wasn't until it all got a lot worse, periods literally like being in labour, constant daily pain, tired constantly, feeling sick, that I decided to go back to GP, and demand some answers, I went back over my whole. Life, was then sent to see a gyne, who pretty much said the same thing, advised me to get the coil, I can't have the coil, I had a tilted womb, and it didn't fit last time, 10 years ago, "we'll try it again". NO,

So back to GP, got referred to bladder doc, did scans found a kidney stone, all the doc where telling me this pain isn't like kidney stone pain, I KNOW, IT ISNT, THATS NOT WHATS CAUSING MY PAIN, but no further investigation was allowed until they ruled out the stone, so had lithotripsy on it, past it and still no change, I had no done my homework, and knew it was endo,

Back to another gyne, who finally said the word, ENDOMETRIOSIS, I gasped with pleasure, knowing full well I didn't want it to be that, as like I said I had done homework and knew how hard the journey could be, but I had a lap and it was apparently minimal endo with a nodule and on the utero sacral ligament, and suspected Adenomyosis, he excised and ablated the endo, but I was no better, so I had a hysterectomy for my Adenomyosis, I'm loads better, but nowhere near normal, I'm still in pain most days, I feel sick most days, I'm shattered after a 4 hour shift at work, and generally only working at a 50% rate of my full capacity,

I'm now under a specialist on the BSGE list, I'm going for a MRI on the 23rd Jan, then seeing the specialist again to decide on a plan,

So after of of that I'm still in the dark somewhat, I'm feeling crap, and very low, I hate being ill in front of my children, I don't want them to remember me like this, I used to be fun mum, on swings and slide and jumping off sea walls, now I just sit and watch,

I beg that we all find our answers, but we can't give up,

My New Years resolution is, I will be better this year, keep pushing,

And good luckxxxx

Wow that was a long one lol

[emma-85 in reply to Tboag]

Good luck for the 23rd of Jan. It is so difficult being ill infant of loved ones, my heart goes out to you. Been referred to gastro...he has ruled out bowel and strongly believes it is the endo! Just checking for nerve root compression.xxx