I certainly don't think you are on your own. I have felt like this for a long time, not helped by the attitude of certain professionals I have encountered along the way.
Let me give you my worst example
I had to speak to the Occupational Health physician at the place where I worked. This was immediately following this sequence of events :
Months of severe pelvic pain. Laparoscopy found extensive endo, ovary in torsion, adherent to pelvic wall. Attempts to free it unsuccessful, scheduled for further open surgery
Salpingo-oophorectomy by laparotomy. Extensive endo and adhesions found. Ovary dissected out with remnant left in situ.
Readmitted shortly afterwards, collapsed with peritonitis and pelvic abscess. Spent another month in hospital with horrendous spiking fevers and IV antibiotics
Post op assessment - pain worse than ever, very extensive adhesions throughout pelvis, intractable pain (all of which would necessitate 7 further surgeries over the next few years, bowel repair, etc, 2 years on zoladex, complete loss of fertility etc....
And do you know what the Occupational health physician said to me?
''I believe you have been having some trouble with your periods.........''
He made me feel like some stupid, irrational woman, complaining about something that was a natural bodily function, and I have found that this is the attitude that seems to prevail in certain quarters. You have ''women's troubles'' and it's probably all in your head.
So no. You are not on your own.