Working and endo

Hi all,

I am looking for a bit of advise. This is the second time my endo has flared up after having two and a half years respite after my lap. It is weird that it has even happened as I have been on the pill since before my op and have been instructed to take it continuously which I have done and luckily haven't bled since being on them.

Anyway a few months ago the symptoms came back. All at once, almost over night. I don't need to tell you what they are as you all know, and you are also aware how painful it can be.

I went and saw my Dr who initially prescribed co-codamol. I went away and tried it but it wasn't enough. Apart from making me feel drunk in a rubbish way it did nothing, so then he gave me Naproxen to take alongside. I tried that for a couple of weeks but it just didn't seem to get the pain levels down. Last week he decided to try me on tramadol. I was warned about the side effects but thought, if they got rid of the pain so I didn't have to struggle through every day, it would be worth it. However they just made me feel woozy and once again did nothing for my pain.

After speaking to my GP he told me that basically I have run out of options. The only thing left to try is morphine but he felt that would be too strong for me to function with - which is probably true.

How are you getting through the week? So far I have managed not to miss too much work but when I am here not only am I in so much pain my hot water bottle doesn't leave my side but I have so many drugs in my system that I can barely see the screen. I feel completely spaced out and it is so frustrating!

Please tell me there is something else I can ask my Dr to try me on. I have no problem being a guinea pig but I just can't go on like this.

Any ideas?

Thanks in advance


3 Replies

  • Hi sorry to here you are struggling. Try the endo diet it does help a little. If not you will be left with more invasive options. X

  • Hi Beth,

    I'm so sorry to hear you are in pain again. I have recently been diagnosed with endometriosis aged 24, after 7 years of unexplained excruiating pain.. After seeing several private gynecologists over the last 3 years and being told time and time again that it's "just bad period pains", or "irritable bladder syndrome" I completely lost hope and decided to do some research of my own about endometriosis specialists. This is how I found my endo specialist. I had my first consultation with him a few days ago and he spent 2 hours thoroughly explaining to me exactly what endometriosis is, what it involves and what we can do for the future. The reason I'm telling you all of this is because even if you have had laparoscopies to remove the Endo where the surgeon can see it. It will just keep coming back. Endo finds another place to be.... which is probably why you are having pain again now.

    I'm not allowed to mention any names on here but my specialist performs an operation which is much more complex (I'm struggling to describe it here) but can and does leave women pain free. He has done so much research into endometriosis and is one of (if not, the) most experienced endo surgeon in the UK.

    It is definitely worth reading up about endo specialists in your area. Mine is absolutely fantastic - he truly understand endometriosis and has filled me with hope for the first time.

    Let me know if I can help you anymore with anything. I hope you find some relief soon.

    Georgia x

  • Thanks Georgia,

    I will definitely take a look and see if it will work for me.

    Thanks for the advise, much appreciated

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