Hi all, I just found this blog/forum today and I've never been on anything like this before but I'm having difficulty getting info online. I was diagnosed about 5/6 years ago with endometriosis and polycystic ovarian syndrome. I thought the pain I had was really bad until I had a laparoscopy 2 years ago and we'll just saw things didn't exactly go to plan, so much so that I could barely walk a few feet for the first 6-8 weeks, couldn't drive, spent 7 of the first 9 months post op out of work due to the severity of the pain I was in daily. Things were really bad and though I've gotten used to the pain (well as much as anyone can get used to pain) it has a huge impact on my life, restricting any physical activity even standing for prolonged periods, I also had to change career as I was a carer and could no longer endure the physical aspects of the job, I'd work 2 days and spend 2 days in bed to try recover! Following the op and how much worse I got I got no answers or satisfaction of any kind during follow up appointments to the point I was told at 27 years old "there's really nothing else we can do for you, apart from a hysterectomy" to which I was horrified, and having no children it's not something I was willing to entertain. I paid privately to see an endometriosis specialist in another hospital and he put me on decapeptal (menopause injections) which had no impact on the pain so the last thing he can do is surgery, which is scheduled for Jan 13th 2016, I'm really nervous about going in considering how much worse I got after my last surgery but it's my last option so I have to just put on my big girl pants and deal with it! My consultant has told me he's going to perform something called LUNA which from what I can gather from the online research I've done is cutting the ligament at the back of my uterus to try and help with the pain. I haven't been able to find any articles or forums online from people who've actually had this done and the medical sites I've been on haven't documented great success rates. I was just wondering has anyone on here had this done during surgery and what the results were good or bad? And also if it worked did it relieve pain temporarily or indefinitely? I'm really sorry for the whole life story, and if you made it to the bottom of this post you're a better woman than me., I'd have probably given up as soon as I seem the length of it!!! Thanks in advance to anyone who might be able to help .... Ruth
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