Facebook group !! :D EndoFamily

[Danni93]

EndoFamily Facebook. Page

Not many people look for websites when struggling with endo as its quite a shh shh illness and I have started a Facebook page where everyone is free to speak and help others so please give it a follow and we can all help support one another xx

[Danni93]

This is the link people I am putting my own time into this and would really like to get a large group and start something special for those who struggle alone xxx

[Arcadia-77]

Hi, great to see you have created a group! 😊 In case you are not aware? There are already 100s of endo groups on Facebook, some of the popular ones were mentioned on this thread:

Can I just make a suggestion please too? I see that your group is a "public" one, I don't think this is a very good idea for an endo group, as most women would not feel comfortable having very personal discussions publicly on Facebook. Most of the other groups are either "closed" or "secret" groups, only the members in the group can see what is posted there then.

Good luck with it!

[Danni93 in reply to Arcadia-77]

Yes of course I can make it secret thanks for your help ! And hope you follow x

[Arcadia-77 in reply to Danni93]

I think it would probably be a better idea to make it a closed group - at least for now, that's what the majority of endo groups on there are. Closed groups come up when you do a FB search but the secret ones don't, so you need to have the direct link to join a secret group, or be added by a friend.

[Danni93 in reply to Arcadia-77]

I made it a closed group thank you for your help first group I have done so wasn't to sure of what I was doing 🙊 But I think it's sorted now x

[Arcadia-77 in reply to Danni93]

Great!

[sjgardiner]

I've requested to join! I think it's a great idea didn't know they exsisted on facebook!xx

[Danni93 in reply to sjgardiner]

Thank you ! Once I get some support I'm hoping we can meet up and start fundraising so spread the word ! We are not alone xxx

[Danni93 in reply to sjgardiner]

Hi hunny I've not received your requests? xx

[sjgardiner]

I've followed the link this time! Hopefully you'll get my request! Yeah I'd like to be able to meet up with other people who have it xx

[Danni93]

Thank you ! All accepted and yes I think endometriosis is a very lonely problem at the moment so thank you for following my group hopefully we can get a lot more and become a support foundation xx