Help with questions for specialist

Hi all,

I was wondering if I could get some help with what to ask at my appointment with the specialist on Friday. I was diagnosed with endo at 18 (now 32). Had it lasered during lap and felt better for years. But for the last 18 months things have been going very much down hill. Constant bleeding, pain and bloating as well as depression. I've tried changing pill and tricycling but this isn't helping at all.

I was last at the hospital last xmas and felt fobbed off. They keep suggesting the coil but I'm not keen. I've mentioned having the laser again but they seem reluctant. Why when it worked so well? I want to get rid of it as much as possible rather than just 'manage symptoms.'

Any help with how to stop them fobbing me off?

Thanks!

2 Replies

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  • Hi, if you feel your specialist is not making you feel 100% when you walk out of the office, then you need to see someone else. It is vital that the person you see is able to take in suggestions as well as give them and if something works for you then it is in your benefit to have it.

    For now just ask all the important questions like for one, why they feel reluctant about the laser. Ask about all your symptoms and what can be done to help with those or at least put your at a bit of ease. be firm on what YOU want and don't want. Might also be worth asking if a MRI or ultrasound can be done to see whats going on since it's been years.

    Your specialist should be able to give you all your answers and have you walk out feeling relieved, in my opinion.

    Wish you luck!

  • Thank you for the reply - it's NHS so I see whoever is available. Sadly there's no choice at the moment. I think I just need to be firmer. I think some Dr's just don't have much knowledge/sympathy with endo and I don't challenge enough.

    Good to hear from you.

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