Loosing hope

So here's what's going on. I remember being 11 years old and starting my period. I had severe periods and was getting the same answer from multiple doctors. Your a women deal with it. So now being 22 and having more problems I decided to get an obgyns opinion. He gave me a few different options on what I could do. I decided to get a couple of tests and then talk about surgery. My test and my laparoscopy came back fine and I was healthy. I'm glad to know I am but at the same time I'm loosing hope because of this pain I'm in. So now they are sending me to a pain management specialist. I don't know what to think anymore..

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  • Hi blueberries

    😕 I feel exactly the same! I'm 25 had my lap on Monday and they found I was all healthy... Yay! So why so much pain. I starting skipping my periods since January as they became unbareable. But since then I have developed random stabbing pains, and pain with sex. Also having a smear test I fainted ha. I feel like the Drs think it's all in my head. I have been reading up and I believe I have similar symptoms to adenomyosis. So think at my 6 week review I'm going to request an MRI. I'm definitely loosing hope too.

    Hayley x

  • Hi - it is quite common for endo to be missed at a first lap in general gynaecology as they tend just to look at the reproductive organs. One of the most common places is between the back of the vagina and the rectum (Pouch of Douglas/cul de sac). This will often be full of adhesions and they might see that but can still say there is no endo when it can be deep beneath, usually on the uterosacral ligaments. Pain with sex and stabbing pains are typical of endo there as nerves are affected that refer pain and also the adhesions can pull on pelvic structures - and this pain can be all the time and not just with periods. Click on my name and look at my post on POD endo and how to find a specialist for a second opinion. x

  • Thanks everyone for replying. I go in this Thursday to talk to my obgyn

  • Hi .It sounds so familiar what you decsribed ! I had the same problem , none of the painkillers were working so the doctor gave me "mefenamic acid " , it stops the pain and reduce the bleeding .. Of couerse we are all diffrent and the problems we have are diffrent but I wonder was it really necesarry a laparoscopy to find out what the problem was ?

    Are you in pain all the time or just during your period?

    I hope they will find out what 's going on , try to ask a second opinion .... good luck !

  • Hi - it is quite common for endo to be missed at a first lap in general gynaecology as they tend just to look at the reproductive organs. One of the most common places is between the back of the vagina and the rectum (Pouch of Douglas/cul de sac). This will often be full of adhesions and they might see that but can still say there is no endo when it can be deep beneath, usually on the uterosacral ligaments. Pain with sex and stabbing pains are typical of endo there as nerves are affected that refer pain and also the adhesions can pull on pelvic structures - and this pain can be all the time and not just with periods. Adenomyosis can have similar symptoms. Click on my name and look at my post on POD endo and the link to a site on adeno (which you may have already found) and the one on how to find a specialist for a second opinion. x

  • I agree with lindle, endo can be missed by general gynae, get a referral to an endo specialist for a second opinion. Also adenomyosis can be really painful, though sometimes they can't diagnose it while the womb is in situ - ie. they can speculate that it is adenomyosis based on symptom profile. If adenomyosis is focal (adenomyoma) it will probably show up on an MRI, if it is diffuse through the womb it still may not.

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