Large reoccurring cysts: Hi, hello to all... - Endometriosis UK

Endometriosis UK

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Large reoccurring cysts

heraldc profile image
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Hi, hello to all who are suffering hope you'll be pain free soon.

I've suffered in severe pain for 2&half yrs after having a hysterectomy leaving my ovaries bcos I was under 40. Since this I've. Undergone 3more lots of surgery dueto blocked enlarged fallopian tubes and large ovarian cysts that are causing horrendous pain and grow to sizes of melons within space of 2weeks yet they still won't take my ovaries until they try other things, I can hardly walk I can't sit bcos I can feel the cyst and its attached to my bowel which is being crushed. I'm miserable and sick of constant pain I'm currently on morphine at home plus much more yet they still want to try other things.

I don't know what to do maybe 2nd opinion and negligence I just done know one thing I do know is my life's on hold till it's sorted out and I'm missing so much even doing school runs I'm unable to do, my friends call me crazy usually but at moment I'm miserable, grumpy and depressed by it all. Sorry for ranting just needed to get that off my chest

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heraldc
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heraldc profile image
heraldc

I've had everything removed apart from my ovaries I've nothing else left its crazy they won't take them bcos they didn't want to force the menopause. Yet they'll leave me in agonising pain from huge rapid growing cysts 😞

heraldc profile image
heraldc in reply to heraldc

I had hysterectomy due to horrendous bleeding not bcos of endo, this started after hysterectomy

heraldc profile image
heraldc

Had third prostap injection yesterday horrific pain since don't know what to do with myself 😞

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