Looking for some help, advice and support... - Endometriosis UK

Endometriosis UK

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Looking for some help, advice and support from those of you that understand ...

Princess90 profile image
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Looking for some support, advice, words from those of you that understand ...

Princess90Princess90 25 minutes ago 0 Replies

Hi, I'm new to the group so apologies if this seems a silly message.

I am 24 years old and have had the symptoms of endometriosis from the age of 14. Heavy bleeding, severe pelvic pain, back pain, irregular bleeding, the worst being 8 months without a days break, pain during sex, hormone issues, struggles with contraception etc.

At the age of 17 I was referred to the hospital and they found I had a lot of ovarian cysts, at this time it was left as a we'll see how things go and now 7 years later I have finally been referred to a specialist.

I again have some reasonable sized ovarian cysts and adhesions that show my ovary is stuck to the lining of my womb, the doctors now believe I have endo. I am due to have a laparoscopy on 27th July, pre op test on 16th July. I have managed to get private medical insurance and as such have managed to get the appointment much sooner than on the NHS.

I'm unsure what to expect for the surgery, post surgery and what will happen next?

I know there's a possibility this could be severe endo and I may have to have an ovary removed.

I'm only 24, I have no children and haven't considered having a child at the moment. But, now I know I may struggle to do this it has made me very reflective or my life, what I want etc. I'm also finding when I'm on my own I can get very upset and emotional.

I'm not entirely sure what I'm looking for with this post. I guess it's just the opportunity of engaging with someone that might understand or be able to give me a bit more information if they have been in this position or been through the procedure them self.

Thank you xxx

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Amy-B profile image
Amy-B

Hi, if it puts your mind at ease I had a relatively 'good' experience with my laparoscopy last year. I had no pain post op and none of the shoulder tip pain that is quite common. Tender and sore around the incisions as expected but all 3 were very neat and tidy! Having said that I couldn't wee after my surgery and ended up staying on a ward for a night. Still couldn't wee the following day ( sometimes the nerves around the bladder get disrupted) so they sent me home with a catheter that I had in for 5 days. Yes it was a bit of a nuisance but it doesn't happen to everyone. To be honest it was lovely spending a week on the sofa doing nothing and once the bag was off I was fine. I did a physical job at the time and needed 10 days off as still sore but some people are back to work in a few days so I guess it depends on the individual. Good luck with it, I'm sure it will be fine xx

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