Endo and my contraception hell: When I was... - Endometriosis UK

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Endo and my contraception hell

miss_wendy profile image
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When I was 16 I was put on the combo pill for my period pains. That lasted 3 days before I was throwing up and very weak. That experience put me off contraception but when I met a crap boyfriend who wouldn't wear a condom I had to try another form - should have just dumped him would have been easier.

I was 21 and although I had experienced much period pain I was told it was normal or due to stress by my doctors. So I tried the Patch but it gave me a rash. Necause I couldn't have a pill as I was told it would likely upset my stomach again I went on Depo. For 5 blissful years I had no period, no pains but felt numb. My libido was non existent. When the time came to come off it I was very emotional and the doc thought I had depression so tried to give me pills but I refused to take them. A year followed of no contraception and awful period pains which lasted 3 weeks a month. My belly button discharged but after antibiotics it cleared up and I forgot about it. When I found out about Endo I pushed my docs about it. I had to change docs several times because I wasn't taken seriously. One doc said "What do you want me to do about it?"! After finally getting an ultrasound I was told there was a shadow around my uterus so sent to a specialist in Cromer. He was unfriendly and didn't seem to have time for me. He told me he couldn't feel anything when he pressed on my pelvis so didn't think I had Endo! He told me he didn't want to give me a lap as I hadn't tried all contraception for pain relief.

So 2 years later after having the scan and proceeding with the Mirena coil insertion (painful and I fainted) I have had the worst pains of my life. It wasn't until after insertion. I found out the Mirena is only meant for women who have had children. At work I'd end up on the floor because the pain down my legs was so bad. My periods didn't go away and in the last 3 months I have had painful abdominal shooting pains, constant nausea, food sensitivities, belly button discharging, more antibiotics another ultrasound and I'm going round in circles.

I am now with a new doctor who I'm seeing for the first time on Monday. I need to push him to refer me to a specialist on the NHS. I want my coil OUT. But after this long rant all I was wondering is .. Is it possible to be put back on the Depo as its the only this that stopped my periods and I was pain free? What other things should I ask my new Doctor as he will probably just be another guy who has no idea about Endo?

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