Advice before GP visit

[Kayleigh1985]

Hi everyone looking for some advice. I have had pain for years which my consultant has put down to Endo (without a lap to check) and I have been on prostap for 18 months and then move recently on provera 5mg 3 times a day. Things were going well but started getting pain again. I have been dropped down to 10mg a day of provera as part of management plan and I'm seeing the gp next week for help. I don't know what to do as the 15mg was working for a while but then stopped working and 10mg doesn't seem to do anything. Any ideas on what I should be asking the doctor for. I feel at a loss and I'm in a endless cycle of trying things that work for a while then stop.

Any advice is greatly appreciated.

Kay xxx

[Kayleigh1985]

Hi Lindle

Thanks for the reply

The consultant at the time felt prostap was the best option for me and I didn't question not having surgery as I trusted what the consultant was telling me. I was told the max you can be on prostap is 18 months if you are monitored and have seen other people posting on here have been on longer than 6 months so unsure why there is mixed information ??? I chose not to go on HRT and took vitamins instead which the consultant was happy with. My new consultant nor old one has mentioned a lap and not commented on the link to my weight they have just suggested that losing weight may help. I'm back to see the GP next week who I will imagine will refer me back the consultant who I can then discuss surgery If surgery is an option.

Thanks for the help x

[Tboag]

Hi Kayliegh, I'm also a little worried about your treatment, I think you need to get refered to an Endo specialist and have a laporoscopy to see how and where the ENdo is, if you have a good surgeon who removes all your endo you could be pain free, without medication,

I think any more hormoane treatment woukd be a mistake, like Lindle said, unfortunately your so could doc has put your bone density in jeopardy,

We should be able to listen to our doctors a know that they are giving us the best care but it's not the case, especially with endometreosis,

Fill yourself with knowledge on the subject, and endeavour to get the best possible care, (bsge centre)

I wish you every luck in the world,

Read through Lindles post she has been great for me, very informative and passionate about giving the correct info

Xxx

[Kayleigh1985]

Thank you both for your replies. You have armed me with the knowledge and confidence to go forward and ask for a lap and referral to specialist endo centre xxx I really appreciate your input in this never ending journey xxx