Decapeptyl and breakthrough bleeding :( - Endometriosis UK

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Decapeptyl and breakthrough bleeding :(

3 Replies

Hi Girls,

As the title suggest i've been on Decapeptyl monthly injections for 5 months and am having terrible problems with breakthrough bleeding. In month 1 i had a normal period, in month 2 i had a very light period, month 3 i had no bleeding, month 4 i had spotting for 5 days before my injection was due, and now in month 5 i am due my injection tomorrow but have been spotting for 2 days and am now getting the mild cramping i usually get before a period is due.

My consultant told me i shouldn't have any bleeding while i'm on the injections and it normally takes up to 3 months for periods to return after the injections but im sure if i did not get the injection tomorrow my period would arrive within the next few days so I phoned my consultant today and said something has to be wrong and im not sure if i should get another injection tomorrow if they are obviously not working properly so im waiting on him phoning me back.

Has anyone else ever experienced breakthrough bleeding with these jags?, i'm beginning to wonder if they are strong enough for me because i have been having the spotting plus ovarian twinges every month making me think my ovaries aren't as dormant as they should be.

My consultant has said that after the initial 6 month course he wanted me to stay on them for a further 6 months (12 months in total) but with HRT ad back next time but i think ill tell him i don't mind staying on gnrh injections but i would rather try a different one next time but what is my best option?, prostap maybe?.

Thanks

Tracyx

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ABC15 profile image
ABC15

Hi Tracy...just read ur post there...how have u been since??....ru still on injections. ..I'm taking decaceptyl injections monthly with add back ...had a laparoscopy in Oct to remove two chocolate cysts and have grade four endometriosis so the treatment dey started me was dececptyl injections for six months...I'm seeing a specialist end of month...I'm just wondering are dey working as I'm d first month I got a v.heavy period and now on d second month and have breakthrough bleeding. ..does tis mean Der not workn and if there not does anyone no way will be d treatment then....??? Thanks.any info.wud b great

Fionairl profile image
Fionairl

Hey I started my decapeptyl injection last month and I'm due my second one on the 21st of this month... I started bleeding about 10 days ago I've had some clots and weird colours which really suprised me as my gyn told me that I wouldn't have any bleeding at all I've tried to make contact with them about this as I've also got bad neck chest and back pain I was told by his secretary to go to my gp to get a letter and then present to the maternity a&e to be seen by a doc.

I'm not so sure this injection is going to agree with me but I just can't seem to get an answer from my consultant..

I'm so sorry that your having no luck with the injection and I really hope that you get some answers soon xx

hi!! im actually facing the same thing. i have endometriosis and my doctor told me i should take decapeptyl to stop my periods for 3 months. i took the 11.25 mg injection about a month and half ago, and since then ive had 2 periods!! the first one was sooo heavyy, and the one im on now is not as heavy. but i dont understand how come im getting my periods. im no longer trusting my doctor in terms of advice😞😞

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