Constant and Unrelenting Pain

[Vicki_Ann]

I woke up at 5:30am this morning in agony, which will be the third night in a row this has happened. Usually it's a wave and goes in 5-10 mins, well not this morning. I have passed a lot of clots since then, taken tranexamic acid, ibuprofen and paracetamol and have had to call in sick. I wasn't sure if I was going to vomit with the pain it's been so bad. I have been in tears, and I've only ever cried once before in my adult life through pain. If I stand, it's agony, I am sat with my legs tucked right up and still in pain, but much less than if I straighten out.

What is going on? I'm 27 and have had endo since 11, diagnosed since 23 and I can't recall anything like this ever. Pain is not unusual, but unrelenting and crippling pain is not the norm for me.

I don't know whether to call a doctor or just give it a few more hours to pass.

[Aurorasparkle]

Hi I'm really sorry you are such awful pain and suffering so much.

I know exactly what it is like amd how scary it is. I would give your GP a call and explain that your in serious pain and that is unrelenting and that you have thrown up and passing clots.

Good luck xxx

[Tboag]

Hi, if it's that bad maybe you should go to A & E, at least you would get some suitably pain relief, do you think it could be something else, where is the pain??

Good luck, and I hope you get some relief soon

[Vicki_Ann]

Thank you for all your replies. Finally, 4 hours after the pain woke me, it subsided, and is under control now with painkillers so i have come into work.

I was diagnosed via laparoscopy and no surgery done at that time as there were only pinpoint lesions visible on the ligaments of my bladder. Since then I have been on the depo injection every 10 weeks, norethisterone and tranexamic acid. I am in my final year of a veterinary medicine course so I just want to graduate before I do anything drastic. If this is going to start happening though, I may be forced to go back to my consultant sooner.

My consultant is quite far away from where I live so I have been very fortunate to find someone else who suffers with endo locally and she is going to give me the details of a very good nearby consultant so I can go to my doctor, ask for referral to this closer consultant and see if there's anything else that can be done.

I know that this is progressive but was just hoping against hope it could stay under control for another few months until I graduate.