endo problems

hey ive had endo for almost 5 years now I got diagnosed at the age of 16 after years of constant abdominal pain ive just recently had a op due to the pain I was in and they removed some endo that they could see also a cysts on my left ovarie (always on the left 4 op in 4 years for it) and blood from my pelvic, just before I had my operation I couldnt wee by myself at all and now im under urology havent had my appointment come through yet still waiting for it but I have to do self catheterisation endo has changed my life so much the past 5 years and it seems to be getting worse they are thinking of doing another operation now to see what is going on with my bladder has anyone else been through this not only has it caused problems with my bladder but I have also have ibs with it I cant go out and do the normal things a person would do at my age of nearly 21 and I have lost alot of "friends" due to letting them down xxx

2 Replies

  • Dear AbbieRowbotham94,

    I am sorry to hear of your plight and I thought I would send you some information that might be of use.

    There is some pain management information via the following links, in particular from page 8 onwards of the endometriosis treatment options pack:



    You mention you are now having trouble with urinary issues and these links could speak to that:




    I read into the latter part of your post that you are feeling low and no one should feel this way, losing your friends etc. Perhaps you might benefit from some support that Endometriosis UK can offer you:

    Endometriosis UK offer support options run by trained volunteers that have been touched by endometriosis themselves. They include face-to-face support groups usually run once a month and are countrywide:-


    Online support groups are available for those people who are unable to find a support group in their area or who prefer not to attend a face-to-face meeting. They do not use webcams to maintain anonymity. Again, they are usually run monthly and the next one is 2nd March at 8pm:-


    Furthermore, there is a freephone helpline where you can speak in complete confidence:-

    0808 808 2227

    I hope this helps and I wish you well.

    Take care,

    Simonetta, Endometriosis UK

  • brilliant thank you simonetta

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