I'm a 23 year old who suffers with both Endometriosis and Polycystic ovarian syndrome. I've had 2 laparoscopies so far to diagnose my PCOS in my teens and also remove endometriosis (feb/march 2014).
My main symptoms that I have the most problems with, is my depression (currently on fluxotine, have been for a year and a half now, although ive been on various ones since i was 14)
Since my last laparoscopy last year my symptoms have been gradually getting worse. I have chronic pelvic pain most days, I have dysmenorrhea( excrutiating period pain), menorrhagia (severe blood loss) and constant fatigue and depression. Since my symptoms have been getting worse I was hospitalised just before christmas with heavy clotting and bleeding and incredible pain. I was admitted for a few days with an IV and sent away with a diagnosis of an endometriosis flare-up.
I have severe problems with my bladder and have done now for over a year, especially since my surgery. I can barely hold my bladder, it's painful, doesn't empty properly, i get sharp stabbing pains, a dull ache after emptying my bladder and have to pee constantly- and it hurts- and i mean really hurts, stings and burns, Ive been on so many anti-biotics, and some for months at a time, im currently on cefalexin or something similar but it is no responsive to anti-biotics or so it seems, and frankly i'm worried it could mean that endo has spread to my bladder? Has anyone had this happen? I've have been referred to urology and have my appointment on the 23rd of feb with a consultant- which will be followedup by a cystoscopy (a investigation of the bladder) Its also in the past six month started to hurt to have sex- not just deep pain but also pain on the entrance which gets so irritated and sore most of the time no matter what i do, it's impossible. I ruled out all STI'S and such at my local clinic so its nothing related to my sexual health. I was wondering if anyone else has similar problems? I am constantly bloated, in pain, and so horrifically tired that i'm napping most days and still feel drained. I'm just absolutely at my wits end. I'm going to be asked to referred back to gynecology/ist to talk about my symptoms getting so much worse and maybe another surgery as I cannot continue living like this. I suffer so much with pain in my ovaries and chronice pelvic pain but Ive also started having intense cramps in my legs and also phantom like period pains that hurt so much. Has anyone had the same? I keep googling symptoms and cant seem to find much help. I feel as if Im going mad and my friends and family just cant understand whats it's really like. I'm totally new to forums and such and would just love any input or advice, I really would.
Thanks for listening,