Hi I'm so sorry to hear of what you are going through.
I appreciate I obviously don't know the full story and there may be a perfectly good reason why your specialist is recommending a hysterectomy. However, a lot of research shows that a hysterectomy is not considered to be a cure for endometriosis and is rarely necessary.
I wonder whether you have been seen by a general gynaecologist or an endo specialist (ie one the accredited endo centres on the British Society for Gynaecological Endoscopy)? Also have you thought maybe about getting a second opinion before undergoing this major surgery?
The reason I ask is that I have endo. After suffering from endo for almost 20 years, having 5 laparoscopic operations and a course of zoladex I gave up on traditional medicine when their final options were tramadol for pain relief or a hysterectomy. I went away, started the endo diet and exercised daily to reduce my symptoms. This helped me manage my endo for a good few years.
Unfortunately my symptoms have gotten worse over the years and are impacting on my day-to-day life so I started to do some research and a particular consultants' name in the UK came up quite a bit. Unfortunately he now only sees private patients. Thankfully I have private health insurance that does cover some of his fees - but sadly not all. I have seen him and had a diagnostic laparoscopy and also been diagnosed with Adenomyosis now. This consultant, based at the Elland Hospital, (I don't think I'm allowed to mention his name but if you PM I would be more than happy to pass on his details) is recommending total peritoneal excision surgery and also a hysterectomy but the hysterectomy is purely for the Adenomyosis. Whilst I also have cysts on both my ovaries, he is adamant he will preserve my ovaries due to the health risks associated with early menopause and HRT - he believes vehemently that the ovaries can nearly always be preserved. Anyway I'm booked in for surgery in March and the surgery will take a minimum of 6 hours so naturally I am nervous. I'm 39 and although admittedly no spring chicken anymore I still feel way to young for a hysterectomy so I can imagine how you feel :(.
However I have done my research, messaged people on this forum who have undergone surgery with my consultant and even managed to speak to someone on the telephone who had surgery by him 2 years ago for her endo. In her words she was an "absolute mess inside" and other surgeons were recommending hysterectomy. This consultant undertook a 9.5 hour operation and she avoided the need for a hysterectomy. I have read other similar stories about this consultant on this forum and some endo forums. It appears there are few surgeons with either the skill or inclination to perform such complex endo surgery which I think is why all too often surgeons recommend hysterectomy and bowel resections as it is the quickest and easiest solution.
If you haven't done so already search this forum for 'total peritoneal excision' and you'll be able to read some of the stories I have. I obviously haven't had the surgery yet so cannot 'vouch' (for want of a better word) for the consultant personally. However, after hearing others stories and speaking to someone directly I feel as confident as I ever will be that he is my best shot at finally having a better quality of life.
It may be worth considering at least a consultation appointment with him and a diagnostic laparoscopy (which he insists on regardless of previous diagnosis so he can see for himself the extent of the disease) to see what he thinks he could do? If financially this is not an option I have also heard that there is a NHS consultant at St Mary's Hospital in Manchester (he's on the list of accredited endo centres) that also has a good reputation.
I wish you all the best, x