Does diet help?: Hi. I have been recently... - Endometriosis UK

Endometriosis UK

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Does diet help?

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Hi. I have been recently diagnosed with chocolate cysts in both ovaries and some endo on my bowel. Consultant recommended a laparoscopy or a three months artificial menopause. However, we have a lot happening in the next few months and they have agreed to see me again later in the year.

Can I realistically 'help myself' by changing my diet? I eat healthily but I love chocolate and wine! Any advice appreciated. Thank you.

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8 Replies
Poppybead profile image
Poppybead

I think diet changes work differently for everyone. I follow a gluten free diet and excluded dairy and things first to see what made a difference. This change made a difference to my pain levels and bowel movements quite quickly. Personally, I am allergic to chocolate but still get headaches and still have a drink.

I wouldn't say definitely recommend a gluten free diet is the way forward. I recommend getting as much information as possible and see if you can get access to a dietitian.

in reply to Poppybead

Thank you for your reply! I have been gluten free for the last five years as IBS was my initial diagnosis! The list of things not to eat on the endo diet is so extensive!! I will try that though, perhaps exclude dairy first and then move onto other things rather than get rid of it all at once! Thanks again.

Gemx85x profile image
Gemx85x

Ive changed to gluten free as I suffer terrible with my bowels I get consipated all the time but since changing I'm only getting conspitated when I'm on my period which a lot easier to deal with than every couple of days x

in reply to Gemx85x

Thank you. x

Wind_mill profile image
Wind_mill

I have found changing my diet really helpful, I have cut out wheat, gluten and sugar and have increased the amount of good fats, protein and green vegetables I eat. I hardly drink any alcohol but really notice when I have sugar and alcohol that my pain (including headaches) and energy levels suffer. I went to see a dietician but didn't find them very helpful, however I have seen a nutrionist on 2 occasions and they were brilliant! I now have coconut or almond milk, can still get away with eating some cheese, eat a lot more seeds, nuts, beans and greens. I also drink water or peppermint tea (so no caffeine). I think it is a bit of experimenting to see what works for you! I do have the odd slip up but it doesn't matter too much if for the majority of the week I have been strict. Henrietta nortons book on endometriosis is good. Also the 'I quit sugar' book is good too hope that helps.

in reply to Wind_mill

Yes I suppose the 80/20 rule could apply? Thank you very much for your advice! x

Hi Linda

Thank you for replying to this thread. I have been following with interest many of your comments on here.

Since I posted this question I have obtained a copy of the MRI report which states that there is also thickening of the recto vaginal septum. This also made me wonder if I should be referred to a specialist, but the guidelines I read state that my gynae consultant would have to do this?

I am currently under the care of a general gynaecologist at my local hospital. My problems only really began in October with a ruptured endometrioma and to be honest, I don't really suffer much at all. Which is another reason why I declined the surgery offered to me in January.

Perhaps I should see my GP? I have another appointment with the consultant in May?

Marie

Thanks again Linda, I really appreciate your replies. X

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