Back pain: Hi girls, I struggle with... - Endometriosis UK

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Back pain

Rachele profile image
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Hi girls, I struggle with constant back pain and have tried two different types of combined contraceptive pill without any success. Has anyone found a contraceptive pill that has taken the back pain away? Any advice would be much appreciated xx

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Rachele
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givemeananswer

Hi Rachele,

Have you been diagnosed with endo?

I am a old veteran of this disease. I found the back pain unrelenting as well. Never found any solutions so I hope you have better luck than me. Anyway if I had my life to do over again I would have looked at this disease as one thing and the back pain I would have persisted with my GP to send me for MRI and bone density scans earlier on.

Monitor your disks and bone density as hormones can rob your bones of their health. I now have bulging disks and osteopenia. I've never had an injury so I believe it is disk degeneration from this disease.

I am only getting active now at age 50 to seek help as per the advice of my gyne specialist. He recommended to my GP for me that i see a rheumatologist and a neurologist,( one of the disks is pressing a nerve) my GP only said to my scan reports that I have a few bulging disks but nothing that requires surgery.

A physiotherapist diagnosed me with sacroiliac joint dysfunction.

I carried two pregnancies to full term. the worst part of the pregnancy was this back pain, throwing up from morning sickness and puking in the toilet was excruciatingly painful. My husbands still makes fun of the time I actually ripped the towel rack out of the wall trying to support myself through this.

This gyne specialist also just informed me that when I had my hysterectomy 11 years ago that my uterus weighed 132 Mg as opposed to the average weight of 80 mg. No one explained that to me till now.

I still have recurring back pain though even after the hysterectomy. And I wish I had monitored the condition with MRI in the beginning.

That is my advice from experience. Get the right help and find out about calcium supplements or whatever else can help you prevent long term injury.

Get a pelvic, hips, lower back and sacrum mri. I had only the pelvic/hips and lower back down, two separate dates. Don't know why they don't just scan the sacrum at the same time.

Getting corticosteroid injections by fluoroscope to test for sacroiliac joint dysfunction didn't work neither neither did treating the bursitis with these injections blindly.

Nothing masks the pain and naproxen from years of period pain destroyed my colon gave me IBS.

Don't give in to accepting that you are a chronic pain sufferer who has to depend on drugs. Get the right help.

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