Hi everyone, sorry for the rant but I'm so fed up with the NHS doctors. I had an op in June this year where they burned off bleeding lumps inside my bladder which was causing me horrendous pains. I'm still in pain. My consultant discharged me 3 weeks ago saying to me keep taking antibiotics and pain killers even though they don't work, and eat whatever I like.
I told him I can't eat whatever I like and its a waste of time me taking antibiotics that don't work.
I told my consultant that I can feel there is something on my bladder, when I open my bowels and when I pee I'm in so much pain, I have pains when I eat solid foods. I'm on a wheatfree, glutenfree, dairyfree, soya free diet. Do you know what my consultant said to me? He said there is nothing else that can be done, you just have to learn to live with it and discharged me. I was so angry, I went home crying to my hubby and told him what the consultant said to me.
My hubby went on the internet and started looking for a private doctor, he found one and we went to see him 2 weeks ago, he was so nice, he listened to me and was so understanding, he did an internal CT scan and showed me wuhe found. My bladder was stuck and pulling to the left, my right ovary was stuck and he couldn't find my left ovary. I then had a CCT and MRI scan done. My private doc phoned me and asked me to come and see last week Thursday. I saw him and he told me he knows why I'm in so much pain, my insides are stuck together, I have lots of Endo, the biggest Endo is sitting on my bladder, I have a big cyst on my left ovary that's why he couldn't find it, I have Endo on my right ovary, I have it on my bowels which is spreading, I have Endo near my rectum, near my Virgina. I have adhesions as well.
When he told me all this I cried, I thought it was all in my head but now I know it's not the pains are real. I'm going to have an op to remove all the Endo, cysts, adhesions in 3 weeks time.
I'm Wondering why NHS didn't pick any of this up. Don't they know how to read the scan or don't they know what to look for.
I'm so worried about having another op, I wish there was another way of getting rid off endometrioisis. Has anyone had any problems like I have with the NHS doctors or am I the only one. I'm Feeling so only, afraid, I just want to cry a river and feel sorry for myself but can't as I have kids to take care of.