Morning all. Just wanted to share with you all that my results were good and bad. First very good thing I am clear of endo for the first time in ten years yippee!!! But apparently it is a problem with my bowel. I know I have IBS but she couldn't answer my question of why I have been serious endo pain ( or what I thought what endo pain) when she came round to me I was not fully with it yet and not awake enough to ask questions, ( I wish they wouldn't do that). Just wondering if anyone has got any ideas of where or what my pain could be from or had the same. She has told me to keep a diary for 4 months of everything I eat etc and also periods for next ,ones, bleeding and pains etc and then go from there to see what triggers my pain. Hope someone can help me shed some light on this.
Han xx
Written by
hansieban
To view profiles and participate in discussions please or .
Do you think your GP would be open to referring you to a GI doc? Might be worth getting other causes of daily debilitating bowel pain ruled out (outside of the IBS - could be the IBS, but could also be something else) if your endo specialist is sure it's not endo causing your pain.
With your IBS do you struggle with constipation or diarrhoea? If the latter, you could try buscopan. If you find you get a lot of gas/wind then colpermin might help. If you get constipation then tackle that. If you can start tackling any issues that are obvious you can establish what it definitely is not.
Food intolerances are worth looking into. Some people with IBS find too much fibre is irritating and sets the IBS off. Also not sure if you've tried going gluten free but that's also something worth thinking about.
Hello. Thankyou for your reply. She said she is going to refer me within the next four months once I have done a diary so we can see if there is a pattern or what my triggers are. I have had IBS for a while and suffer with diarrhoea (lovely) when something triggers it. I was a bit suprised to hear that there was no endo (I know it's a good thing) but the pains are exactly the same as endo pain, but she said that my ovaries are clear and my womb! My sister has not long been diagnosed with chrones which she is aware of but she didn't mention anything about it when I said to her well what's causing the pain then? Because some days it has me doubled over in bed unable to walk.
Regards my ibs I already am familiar with some of my triggers and do avoid them when I can. I think you are right that It needs to be checked outside of ibs and I will discuss this with my gp, when I go in for my follow up meeting. I know for me stress does some horrible things to my health and was recently in a very stressful job which I have no left because it was making my Heath deteriorate so it's all calmed down of late, but if it's not endo defo want to get down to the bottom of it and didn't think ibs can cause that much pain xxx
With your sister's Cohn's diagnosis - was it diagnosed via endoscopy or colonoscopy? As well as Crohn's there's ulcerative colitis to consider. The UC can give you really bad diarrhoea.
I agree with you about being pleased there's currently no endo, but then it doesn't explain the pain. You just want to know what it is and treatment options! We know it's not normal to experience that much pain so frequently.
Read this:
Shared Symptoms of Crohn’s Disease and Ulcerative Colitis
It is often difficult to diagnose which form of IBD a patient is suffering from because both Crohn’s Disease and ulcerative colitis cause similar symptoms.
Symptoms related to inflammation of the GI tract:
Diarrhea
Rectal bleeding
Urgent need to move bowels Abdominal cramps and pain Sensation of incomplete evacuation Constipation (can lead to bowel obstruction)
General symptoms that may also be associated with IBD:
Fever
Loss of appetite
Weight Loss
Fatigue
Night sweats
Loss of normal menstrual cycle
Both illnesses do have one strong feature in common. They are marked by an abnormal response by the body’s immune system. The immune system is composed of various cells and proteins. Normally, these protect the body from infection. In people with Crohn’s disease, however, the immune system reacts inappropriately.
However, in people suffering from IBD, the immune system reacts inappropriately, mistaking benign or beneficial cells and bacteria for harmful foreign substances. When this happens, your immune system can do harm to your gastrointestinal tract and produce the symptoms of IBD.
I'm thinking even though your surgeon knew about the family history of Crohn's - the laparoscopy probably wouldn't be an effective way of telling as the camera needs to go in a different area of the body.
She was looking for the endo, that was the original reason why I was having a laporscopy as suffered with endo for nearly 10 years, but she obv thinks it's my bowel, but I will be seeking a second opinion and have a consultation again. Thankyou for your support here and giving me some interesting information which is always good to know. xx
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.