Ongoing...

[Hriverson]

Hi everyone I hope you can help.

Here is a bit of my back story. I have suffered since I was 13 with horrendous periods and excruciating pain I've been passed from pillar to post as I know so many of you have! They even sent me to a mental health clinic. When I was 15 I had 2 internal scans which found an unpopped cyst and the second time the cyst had popped. They told me that was causing the pain and it will go away...

For years I had the same pain and the doctor suggested endometriosis and put me on the pill and that was that. The pain has got worse and worse and in the past few months has become excruciating. After numerous stays in hospital and countless scans, tests and examinations they finally gave me a laparoscopy. Before this my surgan said he could feel my uterus was 'stuck' to my pelvic wall and he suspected adhesions or endometriosis, finally i felt something was going to get done. Last thursday I had my laparoscopy and they said they found no endometriosis, no adhesions but a very serious infection in my pelvis that had spread to my vagina due to a large amount of fluid. But what was sticking my uterus to my pelvic wall?! They said they couldnt really do anything while they were there because the infection would spread so does this mean there still could be endometriosis or adhesions? I feel completely left in the dark. I dont seem to believe that since I was 13 there has been an infection brewing. They have told me it has been caused by chlamidya, despite having every STI test under the sun about 5 times with them and it all coming back negative. It was only one doctor who told me that it has probably been caused by a cyst that they should have drained at the time but didnt. Im sorry this probably seems so rambelly! The thing is, the chances now because the infection has been left for so long I am infertile (they wouldnt test because the infection was so bad). And i dont feel any more in the know about what is causing my constant pain. I was admitted to hospital friday night as I started hemmoraging and they told me that the pain will go in 2-3 days because the antibiotics are so strong, but i feel no better and quite honestly absoloutely awful. I understand I have just had an operation and its expected but I can feel the difference between the incicion pain and the pain underneath, I am getting all the side effects of the antibiotics but absoloutely no relief at all, the surgan told me they are not certain what type of infection it is and have just given me these for the time being but I feel I'm waisting my time! Has anyone had an experience like this? I'm only 20 and have missed so much Uni and work this cant carry on! How is the best way to approach this with doctors? I dont want to go in all guns blazing but im quite honestly so frustrated expecially because they didnt drain a cyst I may now be infertile. And how can i get them to actually find out whats wrong with me?!