Giving up completely :-( : I've had one of... - Endometriosis UK

Endometriosis UK

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Giving up completely :-(

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I've had one of the worst weeks with my illness this week so far! It all started on Sunday when we me and my boyfriend tried to have intercourse. Now I'm use to it always being uncomfortable and suffering with pains but it wasn't until after when I was doubled over with sharp pain as soon as we stopped sex the pain was very intense and went after an hour. Monday I felt fine and we Went to have intercourse (sorry for TMI) but as soon as he inserted the tiniest bit I knew something wasn't right and we stopped then I was hit with the worst pain I have ever experienced I got really hot and brought sick up in my mouth from the pain, that was Monday night it is not Wednesday night and the pain hasn't eased for one second since. It hurts to move walk and everything and anything else. I also came on my period today which is stupidly painful Anyway so I now have pain on top of pain. I went to the doctors very down and upset and she made it worse she said I've had a laparoscopy in march and that showed nothing so basically she can't think of a diagnosis I got home and just cried and cried I am nearly 21 and have been suffering with problems since I was 15. I've now booked a private ultrasound for Friday, I went back to the doctors today as I couldn't stand the pain and he gave me some naproxen and said to go on contraception I really don't think this pain is to do with my periods this time it's completely different it's from my navel all the at across my lower tummy,pelvis and ovaries it's such a sharp stabbing sensation and not dull cramping like my periods. I had to leave work and I am now on sickness report as I've been off 3 separate occasions in 3 months (one of these was the flu) I am completely giving up of being made to feel normal and I'm now worried as my work is going I contact my doctors and my doctors are going to tell them there is nothing there after all of my investigations. I've nEver felt so down in my whole life and I just feel like no one understands ..

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Impatient profile image
Impatient

I am going to put money on that being an ovarian cyst that popped with the vigour of having sex being just enough of an aggravation for it give way at the weakest point and spilled some fluid inside which is now irritating and inflaming whatever tissue it landed on.

Certainly wouldn't be the 1st time some one had sex and exploded a cyst - seems to happen quite often.

The trouble with these cysts is they need monitoring because yes they can explode and the body reabsorbes the contents over the coming weeks (it takes that long) - but they can also refill up again, they can spring an ongoing leak where they are leaking just as fast as they are filling up.

So if the scan shows up a cyst, or the remnants of a burst cyst, you would still be wise to have a follow up scan in a couple of months time to check if the beast has returned, especially if you are still experiencing gnawing aching pain on that side.

With the exploded sort, the pain is sudden and excrutiating and paralysing and it is certainly enough to make you sick with pain. Exploding cysts are in the top of the pain scale of things that can happen in the human body. Up there with kidney stones, only in their favour the intense pain doesn't last as long s stones, and should ease off in few hours. There will be some residual pains for a few weeks as the tissue that was harmed inside by the debris from inside the cyst, heals and calms back down.

I have had two explode, two have been surgically removed and one is in there still not causing me much bother.

It's a bit like having a shot gun explode in the tummy scattering shot debris all over the place.

You can have scan 3-4 weeks after an explosion and still see signs of the debris and damage - so don't worry that there won't be anything to see, if it was or is a cyst, there will be signs.

If you have a cyst on the verge of popping - you don't need to be doing anything for it to pop, it can go at any time, while you are sleeping, while driving a car (which terrifies me that it might happen then), but you are more likely to burst the balloon when doing some physical activity that just causes that extra strain or tummy squash and whoosh the fluid balloon pops and you are in so much pain you cannot even writhe about for fear of making the pain even worse - that's what I call paralytic pain - the "you daren't move" kind of pain.

Do not return to work too soon. you need to recover and that takes time. 2-3 weeks off would be advisable if you need it. These beasts can do a lot of harm inside and the drugs needed are strong and zonk you out.

Cyber Hugs to you - it's really not a nice experience and we can all hope to goodness it was a one off and that was the cyst exploded and gone for good in the best case scenario.

Stay off sex till the internal organs have recovered and the inflammation is calmed down.

Shoppingaddict profile image
Shoppingaddict in reply to Impatient

Thank you for the reply, so nice to have support! I 100% think this is what happened also as I had a similar experience when I was 16 when me and my boyfriend had sex and I had the same thing happen I went to hospital the day after and they told me it was suspected ruptured cyst but because nothing showed on my laparoscopy in march the doctors are ruling it out and trying to blame it on my period. Do you know if I can still have my scan whilst on my period and also if the debris will not just be seen as period follicles? I'm back to work today feeling weak and tearful I can afford to lose my job and if they contact the doctor they will just tell them I've had investigations with no diagnosis! :-(

Shoppingaddict profile image
Shoppingaddict in reply to Impatient

Thank you for the reply, so nice to have support! I 100% think this is what happened also as I had a similar experience when I was 16 when me and my boyfriend had sex and I had the same thing happen I went to hospital the day after and they told me it was suspected ruptured cyst but because nothing showed on my laparoscopy in march the doctors are ruling it out and trying to blame it on my period. Do you know if I can still have my scan whilst on my period and also if the debris will not just be seen as period follicles? I'm back to work today feeling weak and tearful I can afford to lose my job and if they contact the doctor they will just tell them I've had investigations with no diagnosis! :-(

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