This is my first post, so please bear with me...
After many year of chronic fatigue, lower back pain, and more recent excruciating pain in my lower right side since coming off the Pill 18 months ago, I have been recently diagnosed with incisional endometriosis in my Caesarian scar. I believe this is not the common form of endo and am blessed to have two children, now aged 17 and 12, but in hindsight it all makes sense now as I think back 20+ years ago to my very irregular periods and difficulty to fall pregnant (although we were not trying, we weren't using anything either and it took a good few months), I'm finding it difficult to get much info on this sort of endo. I've had an MRI scan which identified the lump in my scar tissue, so the doctors aren't planning a laparoscopy nor have they suggested hormone treatment as they don't believe it will help. They have given me the option of having it surgically removed but will only know the true size/depth of it once they open it up!
I am a single mum with no support from the absent father who lives in another country now. My family lives 70 miles away and I have only 1 close friend nearby who has her own problems dealing with a severely disabled child. I do have a wonderful partner of nearly 4 years but we do not live together as he has full custody of his 2 teenage children and faces similar challenges of being a single parent with an absent ex, so my support really is limited.
To cut a long story short, understanding the symptoms now, I believe I've been living with endo for many years but I don't know how to tell my family, especially my children. I am run ragged with 3 jobs, household chores and running the kids around to their activities and, although some help would be fantastic, I don't know where to turn, but also feel that by sharing my recent diagnosis, I will be accepting defeat. As I sit (or rather lie!) writing this, I'm still lying in bed struggling to just get up for the past 3 hours, not out of pain but just the effort and thought of facing the day's challenges. I've lived with chronic fatigue for years, so am used to it and don't want to subconsciously now have a good reason for being too exhausted to do just routine things with the kids, if I tell them what's going on in my body!
Sorry for rambling on, any support/suggestions would be greatly appreciated.