Thank you all for your support and information a few months ago, prior to my 14 yr olds laparoscopy back in June, during which the consultant removed widespread superficial Endo in a 11/2 hour op. He is a good compassionate guy, and the treatment was discussed and he said hopefully it would give he a few pain free years.
She had a 12 week follow up appointment where the consultant shook her hand and called her a hero, and then you could see his disappointment when she told him the pain was already back, he really hoped he'd got rid of it all. He changed her pill and has writing to her gp suggesting that if this doesn't work to have an MRI.
Sadly she has still not stopped bleeding and worse, recently the pain has been getting stronger and stronger and being felt all around her body, in her hands and fingers, arms hips etc and a couple of times she has described a 'popping' sensation around her ovaries.
She has now been off school again for half of the start of this term, her 1st year of her GCSE course, and is beside herself with both pain and anxiety for her schooling.
She has recently had her pill changed to microgynon, but this hasn't stopped the bleeding and was also prescribed codeine in addition to paracetamol and ibuprofen (she's been on amitryptaline, cocodamol, transexamic, mefenemic, provera) but nothing controls the pain. She doesn't have another consultant appointment till 12 December - that's 3 months away and three months of her feeling like this and stressing about not being at school!
so, any experience of 'popping' and what would an MRI show?