Suspected Diagnosis: So my doc has given me... - Endometriosis UK

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Suspected Diagnosis

jomc11 profile image
6 Replies

So my doc has given me a suspected diagnosis but they wont pout me forward for a laparoscopy because the specialist at the hospital hasn't saw enough symptoms to put me forward yet, said it could take up to 1 more year! Have been in pain for 18 months now, my periods stopped (this has baffled them apparently) pain during intercourse, the back pain is pretty awful, every blood test/swab/scan they've done has all came back fine, the woman i saw at the gynae dept pretty much said because I never jumped in pain during my last internal she hadn't saw enough to put me forward for the op, I could have hit her seriously!!

It's affecting everything, I'm getting to the point I cant cope with everyday life as i should be able to, I know even if i have to wait another year that I'm still lucky as I have read most females waiting up to 10 years for a diagnosis but i just found the attitude of the hospital pretty shocking to be honest, really dont know what to do :(

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6 Replies
dolly26 profile image
dolly26

Hey, is there no chance u could go to a different hospital or even check in to the doc at it hospital and see who the endo specialist is? I had the same prob with my first consultant but have now changed consultant who is the specialist were I live and he has been fab

jomc11 profile image
jomc11 in reply todolly26

The hos I was at is the specialist gynae unit for this area. I looked into going private but the costs were pretty high unfortunately, just don’t know what else to do as feel like just getting left to it

dolly26 profile image
dolly26 in reply tojomc11

Honestly keep fighting and they will get to the point that they will offer a lap that's wat I had to do for 4 yrs before getting put on the waiting list for my first lap. Like I made a complete nuisance out of myself but sometimes u need to do that with docs I wouldn't pay for anything that I am entitled to on the nhs

jomc11 profile image
jomc11 in reply todolly26

Thanks, I have been I was back at gp last week & I told her I cant cope now, it's all too much

dolly26 profile image
dolly26 in reply tojomc11

Keep doing that honestly it does work and my first consultant was a waste of time like I haven't seen him now from I went in to theatre but my new consultant came to ward that afternoon to see me so have faith there are still some good docs out there

jomc11 profile image
jomc11

Yeah hopefully, I'll set up a picket fence til they send me back lol

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