Endometriosis UK
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Sound like endo!?

Hi! I'm in desperate need of advice! I'm having my first lap next Friday and I'm convinced I have endo but I'm afraid he won't find any and I'll be back at square 1. I have cramping all month long, sometimes it's awful sometimes it's just a full ache in my ovaries. I have painful periods, low back pain, and bad periods. I had a ct scan and a external and transvaginal ultrasound and all my doctor noted was that I had two 2 cm cysts. Would the tests have shown endo and adenomyosis? My doctor has me scheduled for 2 hours to be in there for "excision of endometriosis and cauterization of adhesions" and he has me packing a bag to stay the night because his patients stay over night when anything was found/removed. I just really need advice I'm so scared nothing will be found and I'll be stuck wondering why!! :(

2 Replies

I had a diagnostic laparoscopy yesterday and they found endo. My biggest fear too was that they wouldn't find anything and I'd be back at square one. I had an ultrasound scan which showed nothing so that doesn't mean you don't have endo. It's one of the hardest things I've had to go through but you have to stay strong. The next week will be difficult as you wait for it but at least at the end you will know one way or another. It sounds like your instincts are telling you It's endo, but if it's not then you will have to keep pushing for further tests. Try not to worry. It's out of your control now. Good luck with the test. I hope they find something. You never know, they might find something not as bad as endo

1 like

Hi I had a diagnostic lap last July, after numerous ops and over 17years of endo symptoms and pains. They found no endo only discovery was that there were adhesions connecting my left fallopian tube to my bowel, which the consultant decided wouldn't be causing the problems, and from this lap it was decided that I didn't have endo. I was told it was up to me if I had my tube removed, but they didn't feel that it would solve the problems, I had the opportunity in September and they removed the ovary too. Thankfully I decided to because underneath they found that I did in fact have endo. Sorry for long winded reply but I think don't get down (like I did) if you need more tests etc, endo can be very hard to diagnose.

Hope you have a better result from your lap than I initially did and hop it all goes well for you. X


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