Endometriosis UK
34,152 members30,530 posts

Hi All. I'm new here and have just had a nosy. I have always had heavy painful periods but over the last four years I have had an increased

amount of symptoms which have lead to me been off sick since the end of Jan. I now have pain constantly. I can't drive because of pain up my stomach and down my leg, fatigue, depression, anxiety, lack of concentration, dizziness, fainting feeling, constipation, pain after bowel movement and urinating. Frankly the NHS have been sooooo slow in doing anything. It has come to the point where I feel as if I am diagnosing myself. Finally, because I have pushed and hassled (and mum paid for a private consult) I am now awaiting a diagnostic laparoscopy to see if it is endo. I already have 2 kids and my fiancee has 2 and I have NO desire for more so to me the solution if it is, is to get a hysterectomy. Any advice, comment or insights would be appreciated. thanks x

2 Replies

Hi Accalia, I've just joined too and saw your post!

Obviously I'm not a doctor but what you describe sounds very similar to what I experience - in particular the bladder and bowel problems. Before my lap passing a stool was excruciating and I constantly felt an intense tightening / stabbing session at the end or start of passing urine. Having the cysts lasered has helped immensely but I do still have trouble with digestion and the first wee of the day is always dreaded (something about holding it during my sleep must be making it so sore!)

So you are certainly not alone with that. However I have to tell you that if you want a hysterectomy be prepared to fight, I have been denied one despite not wanting children (I don't want to pass this on among other things) and being unable to work for the last 3 years. My mother and sister both have the condition and my mother was also denied a hysterectomy at 36 despite two children but managed to fight the decision.

It may also be helpful to you to know that they will ask what your partner thinks about you having a hysterectomy. Obviously us women can't make decisions about our bodies without the man of the house about!!!! My partner is, of course, very much in favour ( who wouldn't be?!) But I thought it may help to prepare you for the question as I was shocked when my mother said they had taken my step dad aside to ask him at one of her appointments (they weren't even married!!!) and I have already been asked twice (I am appealing).


Thank you for replying. I kinda guessed that it's going to be a long haul fight. It's not good being unable to work and I am on the brink of loosing my job as I have been off so long. It must really affect your confidence etc being unable to work for 3 years. I have been kidding myself, I think, that I will get this sorted this year.

My other half has already been for the snip an we are both determined there will be no more kids lol, so I get his backing on that point.

The thing is all I see on here are folks having to go back repeatedly because it's re-grown and quite honestly having had issues with my "girly bits" all my adult days I just want it all finished.

Good luck with your appeal, let me know how you get on.


You may also like...