I supposedly have endo now, was in hospital in February for back pain and they found five chocolate cysts, told me I have endo and gave me zoladex, I am on targinact, gabapentin and amitryptyline for the pain. I cannot get out of bed for an hour every day until the pain meds kick in. I'm sick of it and gynaes who won't or don't properly investigate!! I saw my consultant last week for the first time after being in hospital and first he tells me I'm basically wasting his time as I have not had a scan, I'm sorry, was I supposed to order that?? Then why have I just been taking the pain meds and not gone to the pain clinic, again, I'm sorry, was I supposed to organise that?? THEN tells me they don't know if it's endo or not and do I think it is?? Flipping eck doctor, pass the buck much??
Sorry for the rant but I'm tired of feeling rubbish, the hot flushes, back and leg pain and insomnia are killing me, I cannot work and I feel like I'm just existing, not living. How do they expect us to live when we are in too much pain to work and nobody is actually managing our treatment or indeed diagnoses? The consultant says he will just keep me on zoladex as it's too hard to operate. I will get add back hrt, but hang on, isn't it the oestrogen that feeds this horror of a disease?
What do you all do about work? I'm a self employed pilates instructor and sport massage therapist. Neither of which are easy when you feel as if you've been laying on the motorway all night with trucks going over you.
Ok I feel better. Again. Sorry for the rant.