Hi first of all I am new to this website :)! & I thought I would explain my story so you can understand my question :)! (I also apologise for how long this is going to be I've been desperate to speak to people who actually understand me!)
I am 20 years old and have suffered from extraordinarily painful periods since I started them aged 14/15. The older I got the more symptoms I started to get. I usually feel ill 2-3 weeks out of the month either by feeling sick, having cramps and generally being tired all of the time. The first day of my period is the absolute worst.
I get/have: incredibly painful period pains, I am physically sick, I have diarrhoea, I get a fever and sweat so much whilst shivering because I feel so cold, I feel dizzy and faint, my legs switch from feeling numb or having this weird pain shoot in them so I am unable to walk, I feel so tired and weak etc!. The only thing I don't really have is the heavy bleeding - I would say my periods are heavy-ish the first two- three days then they are quite light.
This literally goes on constantly for hours and hours - the only thing I have been able to find to help ease the pain is if I literally scold myself with a hot water bottle to take away the edge of pain. I literally cannot do anything around my periods they are always irregular so I can never plan around them and have missed so many days from work and uni its becoming a massive problem!
After researching on the internet my symptoms I came across the term Endometriosis and finally I felt like I had found something that could be wrong with me as all my symptoms matched! It was a huge relief thinking there could actually be something wrong instead of people just assuming you were over reacting! A year and a half ago I went to see my doctor and explained to him my symptoms and he suggested that I go on birth control to ease the symptoms. I had been on numerous versions of the pill years before and it ended up making me be sick so he decided to refer me to the hospital.
Once I got to the hospital and explained my symptoms the lady doctor (I think she was a trainee or very new as she had to check something over with a sr doctor about what to do with me) and said they wanted to give me an injection to put me through a temporary menopause for three months to see if my symptoms are still the same. Doctors know best right? So I agreed and was told to come back in three months to see what happened. Without my periods I didn't get any of the symptoms I only felt mildly sick a few occasions and had a few experiences of slight cramps but everything else was fine. Upon going back to the hospital (to see a completely separate doctor to the ones I saw before & another trainee or recently qualified one) I explained my symptoms and how they had not happened since my period and he simply diagnosed me with having bad periods and to come back in another three months to see what had happened with the injection out of my system. I had no scans or tests or anything and I had just been diagnosed with bad periods and that my symptoms were just the result of the hormonal changes during the time of my period. I felt so upset and let down that nobody seems to be taking me seriously :(! I think a lot of it comes from the fact I don't describe my periods as heavy?
My periods since have been absolutely horrific and I am getting to the point where I would sell my soul to the devil to not have one again - I am so desperate! I just wanted to know your stories - how you ended up getting diagnosed & whether or not my symptoms sound familiar to yours? Any help or advice you could give me would be great!
P.S/ I went to a psychic evening last week with a woman none of us had ever met before who didnt know who was coming and she looked at me and told me I needed to get checked out down below asap. So when I asked her what she meant she said I had endometriosis and it's getting worse spreading to my ovaries and bowels. How spooky is that?! Its not a very common thing to know about or just pick out of the air and she didnt even know me! I just thought I would share that because even if you dont believe in psychics its still pretty spooky! lol x