Does anyone know of any endometriosis specialists in Scotland for second opinion

[gigie]

Hi I'm new to here Been told by my consultant that there is nothing else he can do for my endometriosis apart from full hysterectomy and will have to have a colonoscopy bag fitted due to damage to my bowls. Was diagnosed 9 years ago with severe grade 4 endometriosis and already had several ops to no avail I'm only 43 and feel that I'm too young to have to live with a colonoscopy bag feel I have already gone through enough and need lifeline don't know how much more I can take.

[Hidden]

My heart goes out to you.

If you go over to the pelvic pain support forum on here and post there may be someone who can help you. Xxx

[Impatient]

Aberdeen has an accredited endo centre

bsge.org.uk/ec-BSGE-accredi...

and

Edinburgh Royal Infirmary is holds provisional status for becoming an accredited endo centre. Details are on this link

bsge.org.uk/ec-BSGE-provisi...

Both have endo specialist surgeons for gynae, colorectal and urology.

These multi disciplinary teams are what you need when you have a complex endo case such as yours.

There is also NHS guidelines published late last year for your care.

Also well worth a read through and to save in favourites, so you can refer back to it if you need to. It is a pdf file.

england.nhs.uk/wp-content/u...

You need to ask your GP or the current consultant to refer you to an endo centre.

[gigie in reply to Impatient]

Hi impatient

I'm already with Aberdeen and my consultant is leaving next week have asked them if they can refer me to the surgeon for a second opinion but could take long enough. X

[Pippy_B1]

HI Gigie

I'm sorry to hear that, I really feel for you. I'm going through a similar thing. Went to have a cyst remove a few weeks ago and then on waking the surgeon said that they couldn't get at it due to loads of adhesions and said the need a hysterectomy. I'm waiting to see my specialist (in Sussex), and I'm just hoping that he doesn't say the same! I'm 40 and have not kids.

Definately get a second opinion I'm sure there must be someone out there who can help. How are your symptoms? Are they manageable?

Good luck and keep us posted.

Pip

XXXX

[gigie in reply to Pippy_B1]

Hi pippy I'm coping my husband has been fantastic at present I'm suffering pain all the time have had the coil fitted for nearly 4 years now it helped to begin with but now pain is back with a vengeance consultant want to put me back on depo injections for 6 months prior to op but been there already prior to ivf and was awfull. Trying to get my consultant to get me appointment with surgeon for second opinion but that could take long enough so wondered if any ladies on here know anyone as I'm now prepared to go private as outlook doesn't look to good x