Help?! 19 and struggling!

Hi, I am looking for some help with my Endometriosis.

I have just turned 19 and was diagnosed with endometriosis at the age of 18 by a laparoscopy after wrongly been diagnosed 3 months earlier from another laparoscopy. I have also been diagnosed with chronic pain, my ovaries are wrapped round my pelvis, my fertility remains unknown (a dye test was done in my tubes but came back inconclusive), LOTS of adhesions, my womb is also slightly bicornuate.

I suffer from severe pain and bleeding EVERY day and have an IUD in place.

I am studying nursing at university and I am really struggling to study with my endometriosis and all the other problems as I have to attend a lot of appointments for Pain Clinic's, weekly Acupuncture (I have to say, acupuncture does help a bit!), gynaecology and GP appointments.

I have been started on jags and Hormone Replacement Therapy to induce menopause for me for the next year. Now, being a teenager is one thing- but being a MENOPAUSAL teenager?!

I was informed that this treatment is not usually done in people my age as fertility sometimes does not return, but with my chances of having children being unknown and the fact that I was about to drop out of university due to my condition made it a last chance attempt at getting some relief.

I am wondering if anyone has any similar experiences? I am really struggling to cope with my condition, the agonising pain I'm in every day of my life as well as bleeding every single day (I spend a FORTUNE on sanitary pads!) and I am stuck for pain relief options.

Thank-you :)

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2 Replies

  • Hi! Before you go into menopause, try AIs. Im 24 and I personally have found a great relief from aromatase inhibitors. Unfortunately I'm on a suicide inhibitor, which means I have to cycle off. There are AIs that are non-suicidal (don't cause your estrogen to fully stop) that have been used for 6 months straight as a fertility treatment, and relieved pain in the subjects. Ask your doc about aromatase inhibitors (aromatase is a building block that endo uses to produce extra estrogen/respawn). They were originally used for breast cancer patients but endo has a similar response to them. (Just know you can't use the pill or anything like that). It's a lower risk shot than early menopause!

  • I have been offered menopausal treatment but due to being almost fully infertile I dont want to risk it. I am going to uni soon to do midwifery and I'm 18 so nit much difference in age between us. I am willing to put uni off for a year just to have a baby and maybe that's what you could do. I sympathise with you so much and i wish you the best of luck with everything.

    Leya :) xx

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