I have not heard of anyone being on it so long! I was allowed 2 yrs of Decapeptyl and it was miraculous and asked to stay on longer.I was sent for bone density scan and it was found I have osteopenia and so I am allowed no more.I think I remember seeing that you can have long term as long as you take add back HRT and your bone density is ok,but in your case I am puzzled your consultant would let you keep going with advanced OP.However I don't know your history,so there may be others factors involved.I managed to keep the GNRH agonists going longer than 6 months ( recommended time)as I also have numerous other serious health issues which made it too risky to operate.If they can do a lap,I would advise that?Also when you come off Z,be prepared for a huge flare.All these drugs do is mask the issue-they are not cures,even if when you are on them you get great relief.
I have been seeing a herbalist and nutritionist who is treating my endo and also working on my bone density.Would be worth getting a complememtary therapist who would treat whole body,if you are able to afford this.
Go with you instincts -I would be very unhappy to keep going with a treatment which could land me in more pain in future.Having watched my Gran suffer so terribly with OP it is something I would not wish for.Re OP I can recommend some good books and also websites,if you want privately mail me?
Hope I have not been incorrect in this advice -have never had Zoladex but assume it works in same way as GNRH?
Sending you my best wishes.