Please please if there is any one with endo after menopause, please mess me.

[Gail50]

If you have endo after going through the menopause. Full hysterectomy both ovaries removed, please mess I'm at a loss has what to do, and so are drs.

[endodoll]

Hi Gail,

After years of severe endo and having tried everything possible, I made the decision to have both ovaries removed (I'm just gone 47yrs) I had the surgery 4 months ago and went into immediate surgical menopause. The only effect has been sweats and not great sleep but these were going to happen in menopause anyway. I have no endo type pain anymore which is great.My doctor had the sense to put me on a low dose antidepressant a few months before the surgery so my mood did not drop at all, it's actually better than ever, the anxiety I used to feel has reduced a lot. I don't regret my decision to have both ovaries removed. I will take calcium, cardio vits etc. to replace the loss of estrogen. What have you been advised to do?

[Gail50 in reply to endodoll]

Hi thanks for your reply. Sorry I did not explain proper I've all ready had ovaries removed. Glad it's worked for you that is brilliant x

[endodoll in reply to Gail50]

How long ago did you have your surgery? Are you still going through menopause and is your problem that you still have endo symptoms?

[Gail50 in reply to endodoll]

Hi, my last opp was 15 month ago. I've gone through the change, had blood test to confirm it.

The pain eased but did not go. For the first 3 month I thought it was the after affects of the extensive surgery.

I was in theater 7 hours ! They had to bring in a liver Specalist to opp an my liver which had a very large mass. Specalist to opp on my kiddney. The ginacolagist had decided I did not need a bowel prep

( even though I had been told previosly by another consultant that it was very lightly they would have to opp on my bowel ) consequently this meant they left my cervics which were completely over taken with endo, glued to my bowl and bladder. So meaning I has a lot of left endo.

I was not has bad because they had taken so much away. But sadly it just got worse and worse. I had a MRI 5 month ago which confirmed the endo is active again.

My new consultant says she has never seen it before ! Not with both ovaries removed. There giving me 6 month of injections in my stomach has a last resort. If they opp again I will need bowel + bladder opp with hight risk of being left with bag on both.

I think I might have endo in my lung, before my opp I was coughing up blood. My gp said it was a chest infection. I don't cough up blood now has I don't have periods ! But the pain in my back and chest is getting worse. I cough a lot and find it difficult to breath. Also the pain that I had in side, associated with my liver, is back.

I'm a dog walker so I've always been very fit. I can only manage a couple of hours a day walking now, that leaves me rolling round in agony ever night crying.

Just hate the way people treat me like I'm soft, or exaggerating. I'm really not.

Sorry, moaning on I'm just at my whits end.