Anyone developed endo in their 30s?

Saw my gynae today and I will be having laparoscopy in January to get a definite answer as to whether I have endometriosis.

My question is whether anyone on here has developed this illness later on in life? I am 38 and the symptoms have developed and gotten much worse over the last few years. The gynae said it is unusual to develop endo this late on as it ususally begins earlier so now I am a little confused...anyone?

6 Replies

oldestnewest
  • Hi, I'm 36 and pains only got worse over the last year before being diagnosed ,I originally just thought period pain just got a bit worse as I got older but I was diagnosed with endo and hydrosalpinx which is severely swollen tubes full of fluid. I have just had a laparotomy to remove tubes and endo and adhesions too. So yes I had no symptoms until a few years ago which began as bleeding between periods and only severe pain about a year before lap. Not everyone is diagnosed at a young age and I have been told it's on my ovary but adhesions were sticking ovary, tubes and bowel together so just because we are older doesn't mean the endo will have spread everywhere either so getting a lap is the first step and once you know what your dealing with it makes it a bit easier. My results weren't great but to finally have an answer to my pain was a relief to know I wasn't imagining it! Good luck and hope you get answers soon x

  • Hi, I'm 44 and peri menopausal. Endo has been found in unborn babies, young girls prior to menstruation, all adult ages including post menopause, upto 70+ , and even in men. Yours is actually a very common age, and of course, you could well have had it some years but now your pain has led you seek help, it has finally been discovered. I would encourage you to do lots and lots of research and preferrably get referral to an Endometriosis Specialist, these are few and far between, but are out there. I wish you the very best of luck xxx

  • I was 31 before getting diagnosed. I had really bad period pains but told it was normal. Eventually in my 20s found a pill that dealt with dat pain. No other symptoms or so I thought. But looking back i had alot of cystitis, ibs, random shooting pains in my rectum and stomach dat would catch my breath. Shooting pains down my legs. Extreme exhaustion at times blamed on a virus i must have picked up. I even think now my asthma is closely linked to it cos wen I've an endo flare up my asthma flares up. And my asthma flare ups would cause my legs to get really sore just like my endo does and extreme fatigue.

    So maybe you'll realise it hasn't just developed you've been ignoring it all these years as you wouldn't associate all the other symptoms wit it.

  • I was 33 when I was diagnosed with Endo, it's now been 4 years and had 3 operations, still no improvement, I'm due to have another op as I have Endo on my left overies, and around my bowels, my bowels are stuck together, I have inflamation in my bladder, bowels and bleeding each month. The pains are becoming unbearable. I haven't been given an op date yet as I need to see a urologist and have a colonoscopy test done wait for the results then be given a date. With the nhs I wouldn't be surprised if my op date was end of 2014. I'm the only one in my family who has it, my mother didn't have neither did her mother and so on. I'm so tired all the time can't sleep, can't eat solid foods I'm on a liquid diet. My family believe it's all in my head they have no idea how I manage on a daily basis. The person who believes me is my hubby, he is the only one I can count on.

  • Thank you. I wonder whether pregnancy has hidden it for a long timas as i had my first baby at 20 and have 4 children, been pregnant 6 times in all having lost 2. The symptoms have only been really bad since after the last baby so i guess that could explain late diagnosis??

  • That's quite possible as the reduction of Oestrogen during pregnancy can "calm down" the Endo. x